I was diagnosed with PMR in May this year (2015) at 57. I was started on 30mg for two weeks, then reducing by 5mg a week until I reach 10mg, and the by 1mg a week until I could get to the lowest amount without pain, and instructed to increase 1mg if the pain returned.
I managed to reduce to 8mg with no ill effects, but upon reducing to 7mg, oh gosh did I get a reaction. I increased back to 8mg for one week and then reduced again to 7mg, and the reaction was even greater. I rang the doctor as mine was on annual leave and was told to increase back to 8mg and speak with my doctor the following week.
Not only did I get extreme pain in my neck, shoulders, arms, round my ribcage and hips, I was exhausted and just wanted to sleep, and had constant sweats that were coming one after the other, plus kept crying constantly. Not good when you are still working.
I spoke to my doctor on Monday and he said he could return me to 10mg that would sort out all the problems, but didn't want to do that, just wanted me to stay on 8mg for 5-6 weeks before reducing again. This is so confusing, especially after reading other peoples posts where they stay on a set amount for numerous months.
I have upped my Prednisolone to 9mg myself, which has sort of stopped the sweating a bit, the tears have stopped, thankfully, but the aches are there constantly and I feel tired all the time.
I do apologise for the war and peace post, but I feel it is the only way I can put everything down. Any advice will be gratefully received.