I think I have found out why I am having low ESR reading when I am having recurring pain from PMR/GCA.
Some of you may remember me being referred to an Immunologist at Addenbrooks in July. Sorry I didn't report back but I have been so busy, I have been nursing my Husband who has been ill. Nothing much happened at that first appointment, just questions about the progress of my illness and then blood tests, it was suggested, as my immune system was so low I should have a Pneumonia jab and a Meningitis one too, then a blood test one month later.
My second visit proved much more informative. I was told my Haemoglobin was low, it should be between 6 and 16 and mine had been 4 for over a year, they couldn't understand why I had not had an infection during this time and were worried my body would not be able to fight one, however the two immunisations had brought it up to 5.9 which they were quite happy with at the moment. Then the revelation, the immunologist said, of course if your Haemoglobin readings are down you can't rely on your ESR readings being true as they will be down too, so if your ESR reading goes up one point, take that as a warning. Has anyone else heard this. My preds are down to 4.5 at the moment but struggling for the past two months, would like to put them back up to 5 but my GP wants me off them asap. Good luck to you all, hope this little bit of information is of some help. Dorene.