Last Thursday I arrived at my Hospital A&E just after lunch with worrying temple pains which were of concern as I have GCA.
I waited hours and eventually was seen by a Doctor at 5pm.
I explained my symptoms and illness in detail and noticed a puzzled expression on his face, well you don't need to see a Rhumatologist I will have a word with someone in the eye clinic he said and left the room.
When he returned five minutes later he informed me that he had spoken to someone and advised me to see my Doctor in the morning and get a referral if I thought it necessary to see a rheumatologist, but this could be a medical emergency I said, His reply was classic, You seem to know a lot about your illness I suggest you decide at what
Level of prednisolone to take and in the meantime book a Doctors appointment.
It was no real surprise to me that this Doctor did,nt have a clue as you read these stories all the time on this site.
Fortunately I doubled the dose of prednisolone to 20 mg when. I got home and things have improved for the time being and this is my fifth day at that dose, anymore problems and I will go back on to 40 mg, but I think I have got away with it this time.
I know that I may be playing Russian roulette with my eyesight but without professional guidance I don't feel confident in self proscribing massive dosages of steroids because the help that you need is not there.