As one year ends another will begin.: Hi all, hope... - PMRGCAuk

PMRGCAuk

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As one year ends another will begin.

Sue8 profile image
Sue8
4 Replies

Hi all, hope you had a relatively pain free Christmas.

As 2013 draws to an end, I am thinking thank goodness that year is over :( Purely because of the pain I have suffered on a daily basis. We are not altogether clear anymore that I have PMR as I was diagnosed with RA in Oct 2012. I am still on oral steroids (pred) and have not been able to reduce from 15mg for the past 6 months. I have been on MTX since diagnosis and 4 months ago changed to injection form. I have been assessed twice to qualify for Humira but still awaiting the delivery of it. On Christmas eve I got the chance to go to my local rheumy clinic and have a depo injection (steroid) it started to kick in on Friday and I have had a pain free weekend. Well ok maybe not pain free but I almost felt normal again. So today I decided to drop the pred down to 13mg, I know we only do 1mg at a time but I have got the steroid injection to keep me going hopefully. My left hand is usually twice the size of my right but last night I showed my hubby that it has now gone down to normal and I can move my fingers.

A steroid injection usually lasts me about 4 weeks so I will be looking forward to having a little fun over the next 3 weeks lol.

Next week I am having a few friends around who home educate the same as me and for once I am looking forward to it as hopefully I can be the great host instead of letting others do everything :)

So, 2014 is almost upon us. My wish is...................to be pain free and feel complete again. Clutching at straws I know but I can dream. Hopefully my new med will arrive soon and more importantly WORK as the MTX doesn't.

So I will hold a virtual glass up and wish you all a Very Happy New Year. xxx

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Sue8
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trish29 profile image
trish29

Hi sue8 !! Good Luck on your Positive start for 2014.. I hope you had aPeaceful Family Christmas and managed to cope.. I know what you mean about the pain and I don't think I would have got through Christmas without being on Amitriptyline but I am suffering PMR Stiffness and Exhaustion...Like you I love the days when I feel fairly normal. I hope you enjoy your entertaining next week..Good Luck and a Happy New Year to you and your Family trish29

Sue8 profile image
Sue8 in reply to trish29

thank you

Celtic profile image
CelticPMRGCAuk volunteer

"Dream" away, Sue and I hope your wish comes true. Happy New Year to you and your family.

Hi Sue,

Good on you - 'coming up for air again' . So nice to hear from you. I hope all goes well and you enjoy yourself. You really deserve it!

Love Pats.

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