I've just been reading all your posts,we all seem to be pretty much in the same boat but with very conflicting views by our doctors.The varying dosage people are on for instance. I'm decreasing by 1mg per week now and am on 36mg but I'm reading of people on 8mg for gca after only a few months. This doesnt make sense unless I'm missing something? I was on 60 mg for 2 months then a decrease by 5mg per month. I've pretty much controlled the decrease by myself,the neurologist just agrees with me. Anyway,I've only had this since dec, all you people that have been coping with this for years sound so strong minded and willed,you give me new courage,so thank you.
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