After being in excruciating pain in my legs hips and shoulders for months I was finally diagnosed as having PMR, fibromyalgia and osteroarthritis in February this year. I was given 15mg Pred gradually reducing the dose until I am now on 5mg. Last wk I saw the Rheumy and he has said to keep on the 5mg for another month and then reduce by 1mg every 2wks until I am off them altogether. My next apt has just come through and it says it's a nurse led apt, does this mean I will be discharged from rheumatology for good? I have got good range of movement (according to Rheumy) as I can raise my arms above my shoulders and put them behind my head, trouble is I was able to do that on the day, this week I have been in agony and taking pain killers to numb it down somewhat. I am worried I will be back where I started this time last year if I reduce my dose and won't have a consulant to turn to. My GP didn't pick the PMR up at all and didn't even check into why my ESR's were raised, he was putting it all down to osteo in my back and just told me to take more pain relief. It was muculoskeletal that referred me to Rheumatology in the end. I know some pain can be put down to Fibro but not the movement/range. I do feel worse on the lower dose of Pred, I hate taking them but they have made it so I can live my usual life again. I'm feeling reluctant to reduce down any more and feel like upping the dose as I was much better on 7.5 and 5mg alternate days.
I've rambled a bit but I read the blogs all the time and they have helped me come to terms with this awful debilitating condition, up to getting PMR I have never needed regular meds or had been ill, it's a hard thing to live with. I'm 54 by the way so youngish by PMR standards, I know younger people have commented on this site.
Thanks in advance for any comments/advice