Sorry not been around much lately but been having more bad days than good.
The fatigue is really getting to me and at least a couple of times a week I am off back to bed for an hour which ends up 2 to 3 hours lol.
Still managing to get out on my wheels at least once a week so getting some fresh air.
I have even tried going a walk with hubby and dogs, hubby with one dog and me on my wheels with my boy Harley. Well it was an experience that's all I will say lol
Been out with my daughter a few times and used my blue badge, it is so much easier having a wider parking space for me to get in and out of the car. I have also had a disabled parking bay done in front of my home at the cost of £100 to the council but again makes life a little easier.
Anyway in June I am off for a couple of days away just with hubby to attend a wedding. We are making the most of it by staying at the hotel of the wedding so I can pace myself and eat regularly cos of meds and diabetes. We have decided to take the wheelchair just in case there is a lot of standing and waiting around but also cos I never know what the day is going to bring from one day to another.
I have even purchased a lovely floral walking stick to blend in with my outfit
I am still on 15mg pred, 20mg MTX and 400mg hydroxychloroquine and all the other countless meds to go with.
Hope you are all ok and pain free