hello everyone! I am hoping someone can shed some light on this for me. I was diagnosed with ADPKD possible type 2 about 6 months ago. As far as I can tell no one in my family has ever had it.
My sisters are being tested now. In February on 2016 I had an abdominal ultrasound and the report reads in part: "no obvious solid or cystic lesions of the kidneys are noted" In 2018 I am told I am loaded with cysts and may need to try this new medicine....Tolvaptan.
I have no symptoms except for chronic pain in my lower left back. My kidney functions are normal. Is it possible there has been a mistake made somewhere? I was diagnosed from 2 MRI's done in August of 2017 and February of 2018.
Many thanks for any help you may have. I have this low level fear in my heart every waking moment.