“Disease Flare” in lung cancer
Hi all 😊 I am still around and check in on you all even if I don’t always post. As a lot of you know, my dad had stage IV NSCLC adenocarcino...
Adding radiation to chemo or not?
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a r...
CanI ask if anyone is taking Pirfendone for IPF, and if so, how soon does one begin to feel any improvement ? Thank you Wendy....
ILD now classed as IPF
Hey folks, Got a bit of a surprise when I received a letter from my Respiratory Consultant stating I have IPF. Only diagnosed with ILD a few ...
Recently diagnosed IPF
I am struggling with being told that I have IPF I am on oxygen for moving around....
Pirfenidone or Nintedanib?
Hi. I've been offered a choice of which drug to take to slow down the my fibrosis - pirfenidone or nintedanib......
which one is more effective in reducing lungs scarring pirfenidone or nintedanib based on long terms clinical trial
Both these drugs pirfenidone and nintedanib available in the market since long time for treatment for fibrosis or lungs scarring My question ...
Hi, My name is John I'm new on this site. I have pulmonary fibrosis and have been on pirfenidone for the last three years or so....
Dad having severe SOB after 1 Alimta maintenance infusion
Hi, if anyone has any insight to this I would appreciate it! My dad has SVC syndrome with the mass pressing a bit on his right ventricle of t...
Update on my dad, stage IV NSCLC, and Help needed
Hi everyone! It has been a whirlwind few weeks so I'm back to update on my dad and also hoping to receive a bit more advice and/or encouragem...
Hi folks Not been on here for a while as I've had a lot of ups and downs but still fighting . I was wondering if those of you out there who a...
Unable to take Pirfenidone due to it causing sickness,so tried Nintedanib at 100mg ok for a week then sickness again,don't what to do. I feel...
Hi, can anyone help with the following :- Has anyone experienced bad side affects with pirfenidone, Really bad fatigue, could not increase me...
And Then There's This Little Ditty....
... that I just discovered......
Hi can anyone help with some advice on Mon I was given new tab from my specialist for IPF called Pirfenidone the information sheet scares me ...
Before this past summer if I paced myself I could manage without using oxygen....
New to this!!! IPF
Advice needed please Husband diagnosed with IPF end of April following private appointment with consultant ( initial NHS appointment not unti...
I am 72. I have IPF....
Hello I am 79 years old and suffer from fibrosis of the lungs and on oxygen 24 hours a day. In May I was put on pirfenidone since then I lost...
Hello, My dad was diagnosed with IPF a couple of years ago, he took a breathing test in October 2015 which showed his lungs were at about 70%...
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