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Experiences with
Phlebotomy
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How did you decide on your treatment?
He did not have me do another
phlebotomy
. 3 months later I started seeing an MPN specialist at one of the leading cancer hospitals. He did not have me go for another
phlebotomy
right away either. About 8 months later they had me try to get another
phlebotomy
.
He did not have me do another
phlebotomy
. 3 months later I started seeing an MPN specialist at one of the leading cancer hospitals. He did not have me go for another
phlebotomy
right away either. About 8 months later they had me try to get another
phlebotomy
.
LIGEBA
in
MPN Voice
24 days ago
a difficult journey!!
my platelets reached normal 200-250 after a year but i still needed
phlebotomy
every 6 months.
my platelets reached normal 200-250 after a year but i still needed
phlebotomy
every 6 months.
AllEars
in
MPN Voice
24 days ago
Pegasys & Hydrea
I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
phlebotomy
.
I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
phlebotomy
.
russkatt
in
MPN Voice
1 month ago
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Updated Numbers Based on Recent Appointment
Hi, I'm about 10 months in to starting Besremi and just had a
phlebotomy
. RBC had gotten to 47 after only 2 months from my prior
phlebotomy
, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current Besremi dose.
Hi, I'm about 10 months in to starting Besremi and just had a
phlebotomy
. RBC had gotten to 47 after only 2 months from my prior
phlebotomy
, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current Besremi dose.
Luthorville
in
MPN Voice
1 month ago
Update 8.0 - Next chapter
Per the previous plan I made with my MPN care team, I will arrange for a therapeutic
phlebotomy
. This will be the first
phlebotomy
since January 2023 and only the second
phlebotomy
since I started on the IFNs in May 2021.
Per the previous plan I made with my MPN care team, I will arrange for a therapeutic
phlebotomy
. This will be the first
phlebotomy
since January 2023 and only the second
phlebotomy
since I started on the IFNs in May 2021.
hunter5582
in
MPN Voice
1 month ago
Rate of Decrease in RBC Count
RBC count was 1.2 million, but lowered by
phlebotomy
to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
RBC count was 1.2 million, but lowered by
phlebotomy
to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
5 months ago
Switch from Besremi to Ruxolitinib
After 2 months, I needed a
phlebotomy
and dose was increased to 150 ug. After another month the HCT continued to increase and I upped the dose to 200 ug - this has been my dose for the last month. My HCT continues to increase and I will have a
phlebotomy
again tomorrow.
After 2 months, I needed a
phlebotomy
and dose was increased to 150 ug. After another month the HCT continued to increase and I upped the dose to 200 ug - this has been my dose for the last month. My HCT continues to increase and I will have a
phlebotomy
again tomorrow.
gjh8733
in
MPN Voice
1 month ago
Effective Management of Polycythemia Vera With Ropeginterferon Alfa-2b Treatment
This dosing regimen was associated with a rapid achievement of CHR without the need for
phlebotomy
or erythrocyte apheresis. The CHRs were very durable and the levels of CHR were numerically greater than previously reported for the slow-titration dosing schema.
This dosing regimen was associated with a rapid achievement of CHR without the need for
phlebotomy
or erythrocyte apheresis. The CHRs were very durable and the levels of CHR were numerically greater than previously reported for the slow-titration dosing schema.
Manouche
in
MPN Voice
19 hours ago
having ablation and INR has dropped
I won’t be drinking kefir this weekend after Googling result says could alter INR but don’t know if I should take another 0.5 extra dose and as it’s weekend can’t contact
phlebotomy
until Monday.
I won’t be drinking kefir this weekend after Googling result says could alter INR but don’t know if I should take another 0.5 extra dose and as it’s weekend can’t contact
phlebotomy
until Monday.
grandadbren1
in
AF Association
3 months ago
Dizzy/full head
I was diagnosed 12/20 started with
phlebotomy
only and then my choice with my Hemo/Onocoligist decided to go right on Besremi. I am having excellent results other than I still have a full dizziness feeling in the back of my head. It is most annoying and does impact my day.
I was diagnosed 12/20 started with
phlebotomy
only and then my choice with my Hemo/Onocoligist decided to go right on Besremi. I am having excellent results other than I still have a full dizziness feeling in the back of my head. It is most annoying and does impact my day.
josup26
in
MPN Voice
5 months ago
Post PV Myelofibrosis - One Year Update
I need a
phlebotomy
due to a high HCT! Perhaps others can understand that I find this comforting - to go back to results I experienced before this latest diagnosis. Anyway, I'm finding peace that my drop in counts was due to Besremi and not quickly progressing MF.
I need a
phlebotomy
due to a high HCT! Perhaps others can understand that I find this comforting - to go back to results I experienced before this latest diagnosis. Anyway, I'm finding peace that my drop in counts was due to Besremi and not quickly progressing MF.
marlenablue
in
MPN Voice
5 months ago
Diagnosed 2015 complete CBC has changed
last
phlebotomy
was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood.
last
phlebotomy
was in June of 2023, since then my HCT is stuck @ 39, HGB is now @ 11.9, MCV,MCH,MCH are dropping each month, RBC is stable @ 5. My ferritin is now 7 with iron @ 21 and % sat @. 5. TIBC AND UIBC are elevated. Fecal test normal no blood.
Pickleball11
in
MPN Voice
7 months ago
Laparoscopic Surgery and PV
A week after the surgery it was 44.9 but no
phlebotomy
was recommended. Two weeks after the surgery it was back down to 41.9. It all worked out!
A week after the surgery it was 44.9 but no
phlebotomy
was recommended. Two weeks after the surgery it was back down to 41.9. It all worked out!
Sheena2020
in
MPN Voice
6 months ago
PV treatment follow-Up
I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for
phlebotomy
every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3 years ago that came back with a VAF of 5% .
I explained that I am 57 year old male in excellent condition taking no medications except for 81 mg aspirin daily and going for
phlebotomy
every 3 to 4 months for PV JAK2 Axon 12. I am asymptomatic and feel great. Had genetic blood work almost 3 years ago that came back with a VAF of 5% .
FlTodd
in
MPN Voice
5 months ago
Update 7.7
In the MPN news, it is time for either a Besremi dose increase or a
phlebotomy
. This is the conversation I am having with my MPN care team. [i]HCT on 11/13 = 45.3%. HGB = 14.8. To be expected with iron levels increasing.
In the MPN news, it is time for either a Besremi dose increase or a
phlebotomy
. This is the conversation I am having with my MPN care team. [i]HCT on 11/13 = 45.3%. HGB = 14.8. To be expected with iron levels increasing.
hunter5582
in
MPN Voice
5 months ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
I switched to Jakafi a few months ago and had one
phlebotomy
. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
I switched to Jakafi a few months ago and had one
phlebotomy
. I’m thinking it was August. The last two months my HCT has been 41 and 41.6, however my platelets continue to bounce between 700 and 800 and my white blood count between 14.8 and 15.
Wewo01
in
MPN Voice
4 months ago
PCV besremi and low platelets
My last
phlebotomy
was in March (before was every 2-3 months) and since that my hematocrit has been in 40-44 range so controlled Up to June my platelet count was pretty stable around 300 however since then it has consistently dropped at each monthly check.
My last
phlebotomy
was in March (before was every 2-3 months) and since that my hematocrit has been in 40-44 range so controlled Up to June my platelet count was pretty stable around 300 however since then it has consistently dropped at each monthly check.
gjh8733
in
MPN Voice
6 months ago
HCT Jumped 3%.
I haven't had to have a
phlebotomy
for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs.
I haven't had to have a
phlebotomy
for months and my HCT was hanging in at 45 or below. I switch from HU to Pegasus 2 1/2 months ago and all of a sudden my HCT jumped up 3%. It must be because of the very low dose I started with which was 45mcgs.
russkatt
in
MPN Voice
8 months ago
Update 7.9.5
Do a therapeutic
phlebotomy
if the leukocytes are looking to low to risk a dose increase. Either plan is Ok with both docs, so I will decide which option to use in collaboration with my docs if the occasion arises.
Do a therapeutic
phlebotomy
if the leukocytes are looking to low to risk a dose increase. Either plan is Ok with both docs, so I will decide which option to use in collaboration with my docs if the occasion arises.
hunter5582
in
MPN Voice
3 months ago
New to MPN Voice
At that time I was getting a
phlebotomy
about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong to keep HCT strictly below 45. My WBC had climbed to close to 12 as well at that time.
At that time I was getting a
phlebotomy
about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong to keep HCT strictly below 45. My WBC had climbed to close to 12 as well at that time.
Luthorville
in
MPN Voice
3 months ago
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