Pudendal neuralgia and sleeping

[Hedgerow14]

Does anyone have an tips for being able to sleep at night with this.My amitriptyline worked well for sleep for 2 weeks then started to wear off, as soon as I could sleep I felt a little better at coping with the pain in the day

I cannot really take anymore than 10ml of amitriptyline because of bowel issues.

Thank you

[Skye22]

It took me quite a long time to get a maintenance dose of amitryptilene that didn't make me feel dopey during the day.I take 50mg at night and 25mg in the morning. I sleep so much better at night and have good pain control during the day.

I too have bowel problems but I manage with a good diet exercise and daily irrigation I have colitis.

Hope you manage to get a treatment that works for you.

[oldglory]

Hello and so sorry to read all your pain. My husband has had a tight pubic floor and by God's mercy is doing better. He still has flares, but better than he was. There's a book called headache in the pelvis, and there's a doc in California there is a clinic you can go to for 6 days but we couldn't make it there. We found a doctor in Bethlehem Pa, Dr Echenberg of the Echenberg institute for pelvic and sexual pain. He does Botox to the pelvic floor to relax the muscles so the nerves will stop firing causing pain and by God's mercy it really helps. It calms everything down enough to do the self therapy everyday. Just keep doing the therapy and if you get the Botox injections, and he also does trigger points injections and nerve blocks. Please Google that and give them a call. He is the best doctor we have ever met and a great friend. He's retiring soon but will still take calls and then he has 3 doctors taking over for him and we met one of them and she is very nice and very skilled and knowledgeable. The new docs are in NJ (only women), KY and FL. I don't know anywhere else you can get this great treatment. By God's mercy my husband is off of his meds and just had them for back up if he gets a flare. Also for sleep doxepin for a short time really helped my husband. Once you start sleeping and get your pain reduced your anxiety will get better. Keep up the good work and do your therapy and try to get a hold of DR Echenberg. God be with you all and may God heal you all completely and speedily.

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[Desperateforrelief in reply to oldglory]

I was getting botox into the pelvic floor for years. I am now getting pulsed radiofrequency of the pudendal nerve. It has given me almost 200% relief.

[Antinomy]

I take pregabalin 200mg two or three times each night along with paracetamol. My pain support nurse approves.

[BlueLagoon007]

Pudendal neuralgia pain normally goes away overnight night. That is one of the criteria for diagnosing it so I am wondering if it is pudendal neuralgia that you have or perhaps some other condition that is keeping you awake at night. Stress certainly doesn't help, so I don't know whether that maybe a contributing factor that is, of course, if you do suffer from stress.

Good luck and take care and I hope your sleep improves.

[summerr]

Mirtazapine helps with sleep. I was having very bad dreams with a full dose so I halved it and added a small amount of Nortriptaline which is similar to Amitryptaline I still dream a lot but the dreams aren't distressing. I wake up through the night with the discomfort but go back to sleep easier with the medication. I used to take only Amitryptaline and stopped because of side effects.

[MsRose]

You may find that products offered by FORIA could help with sleep.

[Konagirl60]

Try passionflower tablets. Can you access a low dose THC gummy?

Sleeping pill if all else fails. I had Pudendal Nerve Entrapment and only a sleeping helped. I used Zopiclone.

I almost died from severe sleep deprivation due to this neuropathy. My doctors brushed me off. You need your sleep. Good luck.