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Michellelouise profile image
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is there any support networks in the uk for people with tarlov cysts x

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Michellelouise profile image
Michellelouise
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suzie44na profile image
suzie44na

Hi, I have Tarlov cysts too. My spine is painful always, I have three of them, i am not sure if there is any support, here in the UK.

Suzie

Have just Googled - there are several:

Arthritis Research UK now known as Versus Arthritis gives this helpline number -

0800 5200 520

Tarlov Cyst Disease UK -

Tarlovcyst.co.uk - this website also mentions links to other support including :

Tarlov Cyst UK Support Group

Tarlov Cyst Disease Foundation

Neuro Talk Support Group

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