I have a question for the administration of the site.

[Debra13]

Hello fellow suffering and administration,

I was just curious about something I thought would be a very good idea but I think we would need permission for it. What if everyone on the site wrote down in a post everything they are doing to help themselves. Including all treatments that we are presently doing and may have tried whether it didn’t work or did and right an explanation next to everything we tried. What it is and how we felt during and after. It’s just an idea. What works for one or doesn’t may help another. It’s just a theory I have. We are all different yet very much the same in our suffering. I just thought it would be nice because we aren’t all under the same cookbook if we were the same recipe would work for all of us. Thank you and God bless Deb 👍🤝🙏

[Alaine1 Administrator]

Hi Debra,

That is something that could work. I could then use it to create a pinned post where self help measures, medication, surgery etc are listed for each pelvic pain condition. If someone like me has mixed pelvic pain conditions I might put the treatments by each medical condition or create a separate heading for those with mixed pelvic pain conditions.

Is this something people would be interested in?

[Pommo4 in reply to Alaine1]

Great idea!!!!

[Hidden in reply to Alaine1]

I agree it would be a good idea,then people could just browse through and see if there's anyone they connect to.👍

[stenosis49 in reply to Alaine1]

Yes what a good idea, we might learn from this what could help us with managing our pain differently

[Alaine1 Administrator in reply to stenosis49]

Hi Stenosis49

It would be great to have your input on the new thread as to what has and hasn’t helped you. Don’t forget to include your pelvic pain condition(s). If not diagnosed simply put CPP (chronic pelvic pain).

[Pommo4]

Think it us a terrific idea. How can we di this?

[Alaine1 Administrator]

We can continue on this thread or I can do a new post where people reply with their pelvic pain conditions and treatments they’ve had. I would then put them all together on one post and have it pinned for easy access. I could then add to it still as more people post. I hope that makes some sense,I know what I mean 😂

[Debra13 in reply to Alaine1]

Yes, Alaina. That does make sense. This would be a great thing. I understand we are not supposed to give medical advice but it we write what we are doing one can take this to there current specialist and see if it’s safe. Can this be done. So it’s not like we are giving the advice we telling how it worked on us. So, technically we are not giving advice to use it. You have to use your own judgment and take it to your doctors and see if they think it will work for you. If you like I’ll go first with everything I’m doing and tried. Let me know and I can post it. Or send it to you in a PM and you can do with it what you like. Thank you. Deb. God bless. 👍🙏🤝 stay strong everyone. Ok.

[Alaine1 Administrator in reply to Debra13]

Hi Debra,

I think I will start it on a separate post so everyone can see it. That way it is easier to find. I will do this now 🌟

[Debra13 in reply to Alaine1]

Awesome Alaine. I will follow your lead. Thank you so much

[Konagirl60]

Thanks Alaine and Debra.