Any one else lonely?: Sorry I need to... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,424 members5,668 posts

Any one else lonely?

Wendymcconnell profile image
7 Replies

Sorry I need to rant. This pain makes me feel like a freak at times. People just don't get me. Over 3 years of chronic pain and my friend's say " Are you stilll in pain?" Then sigh and walk away. Now I have stopped talking about it. Why do people ask how you are if they really don't want to know? Feeling incredibly lonely and isolated just now. I have a wonderful husband and 3 great boy's, but they just don't get me 😣

Written by
Wendymcconnell profile image
Wendymcconnell
To view profiles and participate in discussions please or .
7 Replies
beatitude profile image
beatitude

Hi! I do sympathise. If I say I've got something wrong with me and need help and don't know what to do about it, some people just say, 'Oh.' Some people say, 'Do you want to talk about it?' Those are the real friends. Sadly, there aren't that many. That's why we come on here. We don't always know what's caused it in us, personally, and that makes it hard to find ways of putting it right, so I suppose it's left to us to keep pushing for answers. I know that isolated feeling, but when I look on here, we find we are not alone. It's like joining an army of soldiers.

GUMG profile image
GUMG

I am sorry I do understand the difficulty of clearly articulating what is causing pain so that friends or family can understand. I don’t know what your specific issue is but know that if it is A chronic pain in your vagina it becomes even more difficult to discuss. How do you describe where the pain originates from or the exact feeling it causes with certain physical motions, sitting, standing, walking. I have had this particular issue for going on 10 years. I have many friends and an extremely supportive husband and children, yet I feel at times they are “over it“. This is easy to understand because they would expect by now it would be better, why not after several surgeries. You are not alone if that is any consolation. As Beatude indicates, that is why you turned two sites such as this one. Support and encouragement from those who are in similar situations may help you find different ways to deal with the pain and learn to manage your life so it does not cripple you. If that is possible. Managing pain is not the same as just excepting and giving up. It is finding a new normal and learning how to Keep you going. While still looking for medical treatment that might actually help.

I am sorry sounds a little preachy perhaps I am talking to myself as well. I wish you good luck and best wishes

Hi Wendy,If you don't mind me calling you that🤔.

I totally empathise with you. Just like GumG,I've had this pain for over 10yrs too,gradually got worse though. Like most people with any kind of chronic pain,others don't understand why doctors,pain clinics and such have not stopped it for us. I have to admit I'm guilty of that in the past too." Oh she's just looking for sympathy,or attention seeking". How wrong is that.😢😢.My pain becomes worse at night when I'm trying to relax and watch TV,sometimes I'll cry and tell my hubby I can't take much more,he's a gem with me,but there's nothing he can do,and he gets as frustrated as me,sometimes it can cause a row,out of frustration,but he NEVER disbelieves me. Friends will just go "how's your tum" if I tell them,they will cut me short,to tell me there news,neighbours the same. When anyone asks my hubby how I am,he's reached the stage of just saying alright,because they think since last time they seen him,someone waved a magic wand over me. Now there you go Wendy that's a RANT😂🙄. So you rant as much as you like,were all friends on here,and who knows you just may get some good advice. Like I've had recently.

I will just tell you I have the most sympathetic hubby ever,and my youngest Son,but my other two boys,not at all interested,I think they think I'm attention seeking. But we can't help how people think,but we can support each other. Big hug to you😘

Konagirl60 profile image
Konagirl60

People do not really understand something they have never experienced. If they are an empath they may have some insight.

This is an opportunity for you to relax and find a new hobby or craft that you can do. Do you have the energy to read a good book and escape into another scenario? Can you attend an aquasize class? What about puzzles like sudoku or crossword puzzles to distrcact you?

I totally understand your feelings. I have been a prisoner in my home for ten years! It took six years for me to give up and accept that I will never be going back to work. I had a fulfilling and high paying career that I lost due to medical negligence and improper treatments.

Thank the Lord you have a partner and sons to keep you company. Do you have a pet? Is there a support group you could attend where you might meet new lady friends? Try to enjoy simple pleasures. Hugs.

xXx

downtowntiger profile image
downtowntiger

And they never will unless they experience chronic pain. I am so sorry for your pain. Pain is a two-headed beast that can turn on a dime. The smallest thing can set it off or a cataclysmic event leaves it dormant. I live with my pelvic pain remembering that it has gone away in the past. I pray for the time it goes away and stays. I recently found a new acupuncturist who has helped me tremendously. I see glimmers of hope for myself, but I will never be like everybody else. I have accepted that and forgiven those who are impatient with me. We all have our mountains-theirs just isn’t pelvic pain. Be kind to yourself. You are doing the best that you can.

zeezee000 profile image
zeezee000

i just wanted to say i understand....

You may also like...

Any chance of being cured?

this pain for a long time now. I was wondering if there's any chance of feeling %100 beter? My pain...

Vulval nerve pain remission and relapse? anyone else?

Hello, I started getting bad nerve pain diagnosed as vulvldynia about 4 years ago...was put on...

Does anyone know any doctors who specialise in managing adhesions?

headed. Any advice, pain management tips etc very welcome. I just don't feel happy with just being...

Lone parents and chronic pain

suffering with chronic pain? It's hard enough coping with everything on your own when you are...

Levator ani destroying my life

Have been on Valium and chlorzoxozone but now have to get on baclofen as the fda stated u can't be...