Freezing the pudendal nerve? - Pelvic Pain Suppo...

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Freezing the pudendal nerve?

Wonderer profile image
6 Replies

Has anyone heard of this treatment for PN sufferers? Has anyone tried this and had success? Thanks!

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Wonderer profile image
Wonderer
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6 Replies
Mascaro profile image
Mascaro

I am interested to know if anyone has done this. Also had anyone done Radio Frequency?

Fe1aii profile image
Fe1aii in reply toMascaro

The PN controls certain body functions from what I have been told. Cutting this nerve is a risk you take when having surgery. I would do just what your doing before letting anyone do anything to that nerve, and that is Ask lots of questions. If you find that this is an approved procedure, please post your results after having it done. I have been suffering with Pudendal Nerve damage since 2006, I have seen dozens of Specialist, had pain blocks done, have a nerve stimulator and a pain pump, put still in so much pain, I had to quite my job to deal with it. If you find this procedure worth having, and get a positive result from it, I might consider having it myself.

It only seems to be offered by Dr Prologo in Atlanta, I'd definitely be interested in giving it a go, long way to travel from the UK, but it can't be horrendously expensive compared to surgery

anne77 profile image
anne77 in reply to

I would love to know if anyone out there has had success with Dr. Prologo in Atlanta!! He is at Emory University which is a eating hospital.

Debra13 profile image
Debra13 in reply toanne77

Yes me too. Remember I was scheduled to have it done and backed out.

Pain63 profile image
Pain63

I know you are not talking about this kind of 'freezing'--but I will tell you the story anyway.

I have pudendal nerve pain.

It makes it extremely difficulty to go anywhere.

It causes me great pain to sit, especially in a car or plane where the seat is vibrating. A few years ago, I had to go on a trip that involved air travel--for 4 hours. When the seat belt light inside a plane is turned on, no one is allowed to stand up. To make matters worse, when the seat belt light is on, there is usually a lot of turbulence--which makes being stuck in a chair even more painful.

I know that ice dulls the nerve pain. I had a gallon size plastic Ziploc freezer bag with me, filled with ice--and I was sitting on it, hoping to freeze the pain long enough to get to my destination. About every half hour, I would ask the flight attendant to fill the bag again with more ice. Sitting on ice works--to some extent.

The flight attendant was really worried because I kept asking for ice , and she could tell that I was struggling to remain sitting. She asked, "What's the matter with you?"

I said quietly, "It's nerve pain. I am sitting right on a very painful nerve. Please tell me WHEN are you going to turn that seat belt light OFF, so I can get up."

She frowned and said: "You really need something stronger. Ask a doctor for some strong pain medication before you get on another plane. Sitting on ice for so long really is not a good idea."

It was a rough ride and I did have to stop sitting on the ice ever once in a while, because it was getting beyond cold. But I got where I was going. It's not something I really want to do again.

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