LOOKING FOR FRIENDS WHO HAVE PCD AS W... - PCD Family Suppor...

PCD Family Support Group (UK)

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LOOKING FOR FRIENDS WHO HAVE PCD AS WELL :P

AnjalMehta profile image
8 Replies

hey! so i was wondering if anyone would like to be friends who share the same condition as i do i.e pcd sit. we could talk about it and get to know each other as well. I'm from India if anyone's wondering.

Here no one has an idea about this disease.

also, is it normal to be very thin?

talking about me - i'm 20 years old and doing my graduation.

would love to know someone who has the same condition.

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AnjalMehta profile image
AnjalMehta
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8 Replies
WhiteTara profile image
WhiteTara

Hi! Welcome to the PCD forum! My husband has PCD (not sit), so I'm not the friend you're looking for, but just wanted to wish you the best!

AnjalMehta profile image
AnjalMehta in reply to WhiteTara

thank you :)

Baynajarian profile image
Baynajarian

Hi! I have PCD as well and while I am not unhealthy thin, I am very petite. I am 19 years old and in college!

AnjalMehta profile image
AnjalMehta in reply to Baynajarian

thanks for reaching out. appreciate it. :)

Hey I have PCD and have been looking for ‘PCD friends’ my whole life ! Xx

fcfilice profile image
fcfilice

Hello for myself I was very thin when I was younger and was not doing chest physio therapy. I had many bouts of infection but when I started to take better care of myself I gained weight and now have to deit and exercise to stay healthy.

ManalRash profile image
ManalRash

Hi am PCD i would like to be your friend please

PetraK profile image
PetraK

Hi

I live on Vancouver island but originally from the UK. I am nearly 52 with Kartageners. This can be a bit of a lonely journey.

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