My name is Silvia and I am writing on behalf of my sister who has born with Kartagener syndrome often associated to Primary Ciliary Dyskinesia.
My sister is now 37 and in the last 5 years doctors have discovered a gene mutation and she has became more vulnerable to getting sick. She has also discovered new symptoms similar to arthritis, stomach pain (maybe celiac disease?) and unusual fatigue (maybe lack of vitamin D?) which we are now investigating as no one seems to find any cause. I would like to get in touch with someone who is experiencing the same symptoms as we cannot find any cause/cure to this at the moment. Please feel free to contact me as I would like to share this with you. A big hug to all, Silvia