Thank u

[2bear]

Doreen. Thanx so much for the post. Wow 30 years. It gets very scary and to hear that felt good. Blessings. Whatever u want to share in how u managed to do this we are all ears — 🤗

[DoreenD]

Hi, 2bear, Even though I have PBC over 30 years I don't have any wise advise, I just try and eat healthy (I do indulge now and then with hot chips) and I do have an occasional glass of wine for special occasions. I do try and stay active and involved in volunteering and have a Website and Facebook group for PBC in Australia and New Zealand, but have a smattering of PBCers from other countries. I think I am lucky even if I do have fatigue and the itch, but everything is manageable. I had good doctors looking after me, I am now living in the country and it has taken me a while to get decent doctors, but ok now.

[2bear in reply to DoreenD]

Hi Doreen. Thank so much for ur response it’s very helpful to hear that - what country are u in now ? Have u found good care - are u taking Urso ? Blessings to u -

[DoreenD in reply to 2bear]

Hi I am in Australia I am 76 years old and go to gym active adults to try and stay active. No good sitting watching TV all day. Sending best wishes Doreen x

[JanetH67]

21 years here. To be honest as the stages have advanced, the symptoms have decreased for me. Stage 1 & 2 were a bit brutal, but 3 & 4 have been much easier to manage/handle (aside from a major bleed)! But still here, still living it up, and plan on doing so for more years to come!

[2bear in reply to JanetH67]

Hi Janet. That’s terrific. It’s interesting that with the stages u are responding in the way u state. I think there is so much that they do not know - blessings to u. I so appreciate u till the time to write me. -