Update:: Well, the Urso hasn’t worked... - PBCers Organization

PBCers Organization

1,505 members296 posts

Update:

Pamela372 profile image
1 Reply

Well, the Urso hasn’t worked like before, so my doctor has added Ocaliva to my list of medication. I started taking it once a day and had the itching side effect. So, instead of wanting to literally peel off the first layer of skin, I wanted to go deeper. It’s crazy, I know...so when I told my doctor that, he put me on Ocaliva (5ml) once a week. The itching has decreased (I would rather have it go away) and we will see what he says about my blood work that I have to get done on 7/21...God Bless!

Written by
Pamela372 profile image
Pamela372
To view profiles and participate in discussions please or .
Read more about...
1 Reply
JaneEyre55 profile image
JaneEyre55

Hi Pamela, I've had PBC and Autoimmune Hepatitis for almost 8 years now. I know all too well about the itching. My doctor prescribed Cholestyramine for the itching which really helps. I also take Ocaliva, Ursidol, and Azathioprine. My ALT/AST have been stable which is great. I hope your bloodwork came back positive.

Not what you're looking for?

You may also like...

TERRIBLE ITCHING TRIED ABOUT EVERY FTIG AND LOTIONS

HI I'm looking for anyone that has PBC and suffering from severe itching like myself all day...
genj65 profile image

Males with PBC? Itch?

Hello I understand that there are few males that have developed this terrible disease. Probably...
CBCB profile image

Anyone with PBC tried Rifampin?

Has anyone with PBC been given Rifampin for sleep and itching? And if so, did it help? Thanks for...
Purply profile image

PBC for my 54th birthday symptoms suck.

Hi my name is Lisa Johnson I was diagnosed with stage 3 PBC on my 54th birthday {03/24/1960]. I...
Used2itarm profile image

Mucus and sore throat

It’s been a week since being diagnosed with Stage 2 PBC. My doctor stopped the Ursodiol two days...

Moderation team

CathyPBC profile image
CathyPBCAdministrator
PBCLinie profile image
PBCLinieAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.