There seems to be a mix up over what my pain is - Fibro or something else. The Liver doctor does not think it is to do with my PBC. Now I have sinus pain and toothpain- soon to have a root canal -and am on ERYTHROMYCIN which makes me itchy. Anyway seems sinus or tooth have affected each other..great!!i Root Canal will be very expensive as I have to go to a specialist - anyone know a good one in East Midlands?
I was diagnosed with PBC way back in 1991 and have taken no medication. The Uri?? made me feel sick and there is not enough proof to ascertain that it really does work. My symptons luckily are few except for the problems I get with pain killers and tablets as Doctors are cautious to prescribe and I get a bit sick on them all.
I often think that the NOW pain is the one to think about as it stops my life - so have gone onto three co-codamal a day along with amitryptiline 15mg at night ...and hope that the PBC doesnt get too much worse. Doctor has OKd this. I am 62 and have had PBC around 22 years, so for the newly diagnosed - this illness does not always act fast and it can hold off for many years, sometimes for ever.