does any one have vitiligo as a problem wit... - PBC Foundation

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does any one have vitiligo as a problem with their pbc

chrissey7 profile image
20 Replies
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chrissey7
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20 Replies
Axl888 profile image
Axl888

Hi chrissey. I sometimes wonder if I am starting with vitiligo as I have patches around my neck that are white. However, I'm not sure whether it is pigmentation that I have on my neck as a leftover from pregnancies! Will be interesting to see what others post.

chrissey7 profile image
chrissey7 in reply to Axl888

i have been told vitiligo is an autoimmune sympton i am new to pbc waiting for a scan next week i also seem to be more sun sensitive and my skin looks more tanned thank god i found this web it is so full of imformation good luck x

Jtxx profile image
Jtxx

Yes I do. My mother had PBC and my father has Vitiligo. Mostly on my hands and face. Only noticeable when I get a tan. Diagnosed 2004. I have 4 autoimmune conditions now (Underactive Thyroid diag. 2005 & AIH diag. 2011 - same time as PBC) once you have one you are more succeptable to more. Hope this helps. X

chrissey7 profile image
chrissey7 in reply to Jtxx

thank you i am new to pbc so am trying to get all the imformation i can

Laurels profile image
Laurels

I think this is one of the conditions with PBC. I only have a few patches of Vitiligo on my torso so unnoticeable. Dont think this is a problem. I would think others have more patches and it might cause them some concern.

Dont worry about it. There are other conditions related to PBC which are a problem.

chrissey7 profile image
chrissey7 in reply to Laurels

thank you

tuppence profile image
tuppence

hi Chrissie, I too have patches on left breast and both wrists.apart from a little itching no problem.take care and good luck.tupence

chrissey7 profile image
chrissey7 in reply to tuppence

only just found out i have pbc so this all new to me thank you so much

Lindilou profile image
Lindilou

Hi Chrissey

I have it on my hands, it has spread a little over the last 7 years but still only on my hands. I always thought it was patches from high factor sun lotion left on my knuckles where I had been applying lotion on the children :-)

Im not too bothered with it at present but I know you can get camoflage makeup to cover it

All the best xxx

chrissey7 profile image
chrissey7 in reply to Lindilou

will try and find out about camoflage cover this is all new to me wait for scan next week re pbc

Jaycee profile image
Jaycee

Now that this question has been brought up, I have had dark patches on my torso just under my breast, Doc says just old age but I've had them for years, now I know why, I would have never have connected this,I also have underactive thyroid, thats why this site is so good, you get more info from here than anywhere else, thankyou all

chrissey7 profile image
chrissey7 in reply to Jaycee

thank you jaycee

in reply to Jaycee

Vitiligo is depigmentation of the skin, that is to say it is white not dark. Dark patches can be caused by excess melanin, commonly known as chloasma or melasma and is common in pregnant women and also women that take the pill. It also appears when you get older, especially on the hands. I hope this helps.

Jtxx profile image
Jtxx

Re the cover up, I think this is offered free with the Red Cross. Think one of the clinics is based at The Royal in Glasgow. X

chrissey7 profile image
chrissey7 in reply to Jtxx

i live in the west country so the royal would be a bit far for me i will find out what we have here thank you so much

Kate50 profile image
Kate50

Hi, the skin camouflage clinics are all over the uk and they are great. The website is changingfaces.org.uk, i was referred by my dermatologist and the staff are brill, they match your skin with the correct cream and powder, the effects are amazing would definitely recommend giving them a try, the creams they prescribe last for up to 4 days and withstand swimming, showering etc, hope you can find a clinic near you :)

chrissey7 profile image
chrissey7 in reply to Kate50

thank you so much i appreciate youf info take care chrissie

skywalker profile image
skywalker

Hi Chrissey7

I am AMA positive, and itch, have mottled palms, aches and pains AND a vitiligo patch on my stomach which hasn't changed in two years. I have not been diagnosed with pbc because my lft's are normal. But I'm going back to see consultant now because pbc is now being diagnosed in patients with normal lft's, no symptoms just the AMA!

I did read that vitiligo can be another autoimmune condition along side pbc, but it's nothing to worry about

Take care xxx

chrissey7 profile image
chrissey7 in reply to skywalker

this is all new to me had a ultra scan last week wait ing to see doc this week hope to be fully informed what is happening to me but i wont hold my breath thank you for your reply

Simba123 profile image
Simba123

I have had vitiligo for about 40 years. It is spread throughout my body, also pbc was diagnosed last year and I have throid disease which was diagnosed about 15 years ago. Anyone out there find a "good" camouflage for vitiligo.

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