Been back to see the specialist.: Been for my... - PBC Foundation

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Been back to see the specialist.

donnathompson profile image
7 Replies

Been for my follow up appointment today and my lfts are slighty up.I am going to have some investigation done on my spleen due to it being enlarged,also going to have a liver biopsy,so a busy few months ahead.

Hope you all doing ok.xx

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donnathompson profile image
donnathompson
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7 Replies
zipitydoo profile image
zipitydoo

Good luck with it all. Let us know how you go on please.

kosy2 profile image
kosy2

Do you have any symptoms conected with the enlarged spleen? I have this dull pain on the left side and wonder what it is. All the best to you.

wongie profile image
wongie

Hi good luck with everything. I'm going for my liver biopys in 2 weeks time. Been waiting 4 months.

wongie profile image
wongie in reply to wongie

Thanks donna. I will let you know how i get on. Must admit though, i'm wetting myself. Not happy with having a procedure done while i'm awake. i'ts not that i'm a wimp, its just that i really don't know what to expect.

donnathompson profile image
donnathompson

Hi cosy i have some discomfort in my stomack all the time,they want to check if any off the blood vessels are bleeding.Good luck to you to wongie let us know me know what it involves.xx

SLWB profile image
SLWB

I have had an enlarged spleen for about a year now, my doctor keeps an eye on it, but he tells me that it is a good thing to see it enlarged (not dangerously enlarged), because that means it is working hard and picking up the slack. My specialist is doing research for PBC and really knows about PBC, so I don't worry about what he calls the smaller things. I am very lucky to have him as one of my doctors, because I would otherwise worry about everything. I have been getting worse as the years go on, it has been almost 8 years. My alkaline phosphate levels are way above the 900 mark. Unfortunately, it will not be the liver itself that gives us grief, but all the little things that come with it. I have gotten used to must of them, but for me, the itching is what drives me nuts! I wish you all the best of luck in your quest to get answers and learn to deal with not just the physical but the mental aspect tha comes with PBC.

donnathompson profile image
donnathompson

Thanks for the message,decided to change my life style going to get healthy and do more excercize.Got my appointment through now so not to long to wait.xx

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