I hope you all know how brave you all are.....
We have been diagnosed with a disease you didn't cause, likely knew nothing about, got a doctor who hopefully know how to take care of us, and we have lab work done for the rest of our lives.
That is lot just in itself. But... we face so much more, don't we?
How will our next lab work be?
Will I be too tired to go to the event I really want to attend? Why am I tired to begin with when I've done nothing. I wasn't this tired an hour ago - why now?
And then there's the itching we face.. for some every single day. I can remember all too well those nights sitting on the side of my bed crying, asking God to make it stop. All too often we just can't seem to find something that helps it.... and so it continues.
What about the stress we have about when will I be 'sicker'? When will this disease get worse for me? and then maybe we face challenges just in our own families....
I know, if we thing about it, there is much more that we all face everyday having PBC. But you know what, we face it every (almost 😊 every) day with all the strength and grace we can muster up. Some days are surely better than others. No matter what happens we get thru it to the next day, don't we? Just remember we DO get thru it... we might need to remind ourselves of that some days that seem to never end. We all here for each other.... asking for support is such a sign of strength and courage!!!
Never underestimate how brave you are!
New diagnosis of PBC 15th Feb. Please tell me this is normal to feel so down, angry, upset and why me, I feel so alone.
PBC and Cholinergic Urticaria
Hello PBCers
Stage 3 Grade 3.5
