Might by helpful...

[DonnaBoll]

This is a post in the past from Robert, the CEO of The PBC Foundation. I felt it might be helpful for some of you to understand that Health Unlocked is.

So, really simply this is a forum technically hosted and owned by "Health Unlocked". The PBC Foundation hosts and moderates this particular forum on PBC. Whilst trying to keep it to patients speaking to each other, occasionally we will input with extra information or any corrections that may be helpful but we try not to be too hands on in here: for us, this is all about peer-to-peer support.

So, now we know this is hosted by the two organisations. However, it is important that you know signing up in here is not the same as signing up to the PBC Foundation.

To join the Foundation (for free), use this link:

pbcfoundation.org.uk

The PBC Foundation is the biggest PBC-specific Patient Support Organisation in the world, supporting over 13,000 patients in 76 countries around the world. It has a number of services including website, helpline (which can use Skype, Whatsapp and Facetime for those not in the UK), a quarterly magazine (available in print or email), a self-management app, conferences, workshops, etc.

We have lay version of EASL guidelines, we also co-author and review other guidelines and academic papers and abstracts on PBC.

We wanted to highlight this so that you can get the best of both worlds: peer-to-peer support here *and* the free, up-to-date, accurate, and peer-reviewed medical information and support from the Foundation itself.

[lovesoccer]

Thank you for posting, Donna.