I want to share more of The Summit information with you.
I know many of you are literally from countries around the world. At The Summit we were given the names of the organizations who help PBC patients literally from all around the world. If you share with us what country you are from, I will gladly post who you might contact or what organization is in your respective country for closer contacts.
I met so many enthusiastic and passionate people who truly care about educating and supporting those who share this disease. So again, if you share your country/city /area with me, I will gladly give you the information that I have.
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DonnaBoll
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So glad you reached out. First of all, do you belong to The PBC Foundation? the reason I'm asking is that you would receive the publication Bear Facts. In the last issue there were 4 workshops happening in March in the Northern Ireland Community. pbcfoundation.org.uk
The contacts I have are for Northern Ireland -
Co. Antrim - Joan Ballie Tel 0131 556 6811 (office) or email joan.ballie1@btinternet.com
I am a member of The PBC Foundation but have not received Bear Facts in a while🤔 must look into that. I live in Southern Ireland in the Midlands so obviously there must be nothing in Southern Ireland for people with PBC. Will look into the above contacts and try and make contact there.
😊 hope you find someone who lives nearby...many of my members in another group met on a fairly regular basis. That 'face to face' or even 'voice to voice' makes all the difference.
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