Combining questions

[DonnaBoll]

I think there are so many suggestions to offer and questions to ask about, that on Tuesdays and Thursdays my 'questions' for the day may be overlapping or even related- just asked in another way perhaps. I'm just trying to have every one contribute what they have experienced or feel has helped them. Sharing all of this can make such a difference in someone else's life. The idea of 'Tuesday Tips' or 'Thursday Thoughts' might just need to be a mixture. Let me know what you think....

[butterflyEi]

As PBC seems to predominantly appear in the female population which in general but not all cases means that they are the central pin of the family it means coming to terms with what can be managed without feeling guilty when symptoms are at their worst.

[DonnaBoll Administrator in reply to butterflyEi]

I totally agree. We have to come to accept that we do have the disease and that we did absolutely nothing to cause it. You are right about women being the caretaker, the nurse, the mom, the housekeeper, the chaffeur.. and so much more. Juggling all of that on the 'not so good' days can be tough to say the least... and still find the time to take care of ourselves too.

[Sister65]

Donna, my suggestion would be to post an article -specific to PBC or just general physical or mental health - one day, and ask a conversation starter question the other. All of us with PBC can learn from each other's experiences and it is also helpful to help others, like those newly diagnosed, with information and suggestions so conversation helps. For those who have not done independent research or whose doctors are not helpful (many I think) articles can provide information they might not otherwise find. Even basic things like self care articles on meditation or whatever, might be helpful to some.As an aside, I do appreciate how devoted you are to this role. Please know that if you do not get feedback, that doesn't mean you are not being helpful. If one person learns something new or finds comfort in learning their particular issue is shared, you are doing a bang up job, You just might never be told. Keeping conversations going is not as important as it is for people to know this forum is there for them. Thanks

[DonnaBoll Administrator in reply to Sister65]

I so appreciate all of your kindness and encouragement. I do have to remind myself that making a difference in 1 person's life makes all I do worthwhile. Thank you for your suggestion of posting an article and then having a discussion about it. Great idea!