ursodeoxycholic acid supplies: Is anyone else... - PBC Foundation

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ursodeoxycholic acid supplies

Gioielli5 profile image
16 Replies

Is anyone else in the UK having trouble getting their medication of Ursodeoxycholic acid tablets?

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Gioielli5 profile image
Gioielli5
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16 Replies
Oidra profile image
Oidra

Not so far, I am in Worcester.

butterflyEi profile image
butterflyEi

Hi, hope you are keeping well and busy.

I have had no problems.

Gioielli5 profile image
Gioielli5 in reply tobutterflyEi

Hi Butterfly, Yes, keeping well and busy. Hope you are well too. Xx

Candy12 profile image
Candy12

Not had any problem with supply at the moment I’am Hampshire..

Although I did notice the pharmacy has given me two different generics in the one prescription this month, could that have been a supply issue not sure.

Redpandatime profile image
Redpandatime in reply toCandy12

same here Candy, 2 different brands, same dose of course. I’m in North Yorkshire. This may point to supply issues.

Dotyy profile image
Dotyy

Hi yes have had problems getting Ursonorm tablet brand of urso for 3 weeks now. Still not arrived at my pharmacy. No explanation as yet. I may ask hospital if this continues. Good luck.

Candy12 profile image
Candy12 in reply toDotyy

I had ursonorm this month, and ursofalk which I don’t normally get, as my GP won’t name it on my prescription I have to have the generic, although I’ve asked multiple times.

gillrich profile image
gillrich in reply toCandy12

Advise your gp that the fillers and colours etc are all diff and they do make us unnwell and the costs are the same according to th pbc foundation infact ask the foundation for help email Pbcfoundation.org.uk for help in this matter

Dotyy profile image
Dotyy

ps I’m in London

funkyfreester profile image
funkyfreester

Hi , I did have a problem in London a couple of weeks ago .....all sorted now hopefully .

Gioielli5 profile image
Gioielli5

I am a little concerned as my pharmacist tells me that it is a manufacturing problem. I realise that there are many different manufacturers so I hope they don’t all stop manufacturing it for the NHS. As there is a move by our government to stop free prescriptions for over 60’s as well, things not looking too good for the future.

Dotyy profile image
Dotyy in reply toGioielli5

hi I very much doubt there’s a plan to stop supplying urso on the Nhs. It’s first line of treatment for PBC. Also it’s been used for years for gallbladder isssues. When my chemist says there’s a manufacturing issue that can be a term used loosely to mean the chain of supply is stuck somewhere. Ie a supplier can’t get from a wholesaler. Can be hold ups for many reasons. I really wouldn’t get so worried, however our Nhs is beyond doubt under attack from this crazy government. Good luck with your supply.

creedy1 profile image
creedy1

I'm in Wigan, no problems at present, though last year had loads of supply issues especially for 500mg tablets, the 250mgs seemed easier to get hold of. I'm usually prescribed Ursofalk or Ursonorm dependant on what the pharmacy has.

gillrich profile image
gillrich

All ok touch wood in Nottingham

liver-bird profile image
liver-bird

im in Greater London and no problem so

Gioielli5 profile image
Gioielli5

Thanks everyone for your replies. Sounds like we are all ok at the moment. ❤️

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