N. Ireland: Hi is there anyone on here with... - PBC Foundation

PBC Foundation

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N. Ireland

Casslucy profile image
7 Replies

Hi is there anyone on here with pbc or aih from n. Ireland?

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Casslucy profile image
Casslucy
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7 Replies
Carrickgal profile image
Carrickgal

Hi I'm from NI, have a group of us if you'd like to get in touchRuth

Casslucy profile image
Casslucy in reply to Carrickgal

Hi Carrickgal omg that's weird! I'm also from Carrick maybe this thing isn't as rare as they say! Altho older than u at 58. Can I ask who your consultant is? Is it the Royal? Thanx Lynn

Carrickgal profile image
Carrickgal in reply to Casslucy

No way Lynn! George Jacob finally diagnosed in Antrim but he has retired and now with RVH. You aren't allocated a consultant there you will end up seeing any of them. Are you with Castle Pracrice? I sent you private message with my number xx

Casslucy profile image
Casslucy

Yep I'm with Castle practice. I seen Dr Cash who is one of the hepatologists in the liver unit in the RVH privately first and he initially thought it was autoimmune hepatitis because of the bloods and then did a liver biopsy to confirm in the Royal but it showed pbc not aih so he has put me on Urso. I was only diagnosed in Feb this year 2 weeks after my Dad passed away so it hasn't been a good year so far!!

Swimathon profile image
Swimathon

Hi there. I am from Armagh. My consultant is Dr. Neil McDougall, R.V

Casslucy profile image
Casslucy

Hi Swimathon yep I recognize his name from the RVH. How long have you had Pbc?

Elledoe profile image
Elledoe

Yes I have PBC

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