Does anyone here drink alcohol in moderation who has PBC? Asking for a friend. 😉

[Missingmy2]

PBC and alcohol

[Hidden]

Hi missingmy2

When I was diagnosed my consultant told my husband when he ask that I could as long as within recommended allowance. I personally chose not to apart from the odd glass of wine for special occasions.

[butterflyEi]

I asked the specialist quite a few years ago and he told me that it was okay in moderation and within the Government (UK) guidelines. I enjoy an occasional glass of wine and find it relaxing but I never binge drink, mind at my age I am not likely to

🤣😂🤣

[Huggy7614]

As with the other two answers, I asked my consultant upon diagnosis and he said it was ok. However, I’d always get a pint, and rarely finish half of it. I was never a big drinker, but I just seemed to lose the capacity for it altogether. Andy.

[Hidden]

Yes, I do on special occasions usually my birthday, works Christmas party and when I’m on holiday. I don’t like drinking at home and my partner doesn’t either. For me, being diagnosed relatively young has been a challenge as I do still enjoy a night out and loved having a drink before I was diagnosed but now I’m always mindful not to put too much strain on my liver.

[ninjagirlwebb]

My hepatologist said it was okay to have a drink every now and then. I drink during holidays and special occasions or wine spritzers if I just want to have a drink to relax (a little alcohol with lots of sparkling water.)

[Debbiem40]

Never been told not to in the 18 years of my diagnosis. I drink every weekend. My results are all stable at the moment, with absolutely no cause for concern.

[janine541]

I was told to have an odd drink was ok by my consultant but to be fair it makes me Ill so dont bother Hope you are ok and good luck

[Katiagreece in reply to janine541]

I’m exactly the same Janine 😕

[janine541 in reply to Katiagreece]

Good to know I'm not alone x

[janetfolley]

Same as majority for drinking alcohol..my consultant said a couple of glasses of good red won't do any harm and I have had PBC for 16yrs

[LeanCat]

My hepatologist never told me to stop drinking. I drink every weekend. I was diagnosed over 9 years ago, blood works are all good.

[JaneEyre55]

Although I was told by my Hepatologist that my PBC was NOT caused by alcohol, I chose to give up drinking altogether. My rationale was, why do I want to potentially cause more harm to my liver. It has been very hard not to toast at my daughter's wedding or at New Years eve, but I found out that life goes on, and as it was when I quit smoking, I take one day at a time.

[hells456]

I was on the point of cirrhosis at diagnosis and my consultant told me to never drink alcohol because the PBC was advanced.

[LindaVillanova]

Glass of wine now and then, usually add soda to it. No adverse affects and I've been stable for almost 6 yrs

[zinchunter]

I was told to drink moderately so I continued with up to 14 UK units per week. Gradually I've reduced this to less than half that, helped by alcohol free beer and cider, which has improved a lot in taste. Will probably just do special occasions in due course. In my opinion less is best!

[Moep]

I too was told that staying within the guidelines of weekly drinks was acceptable. I still do drink but will caution that when 1st diagnosed 7 years ago, I was very thoughtful about how much I was drinking and planned it much more around a dinner out with friends or occasion. I was sticking to no more than 2 drinks at a time and no more than 7 drinks (female) in a week. However, I recently noticed that I was starting to have a glass of wine before/after dinner, out with friends, when my adult kids are around, at the beach, etc... and it was becoming too much. I am back to closely monitoring my intake. Old ways creep up after a while so I would advise strict moderation and intention! I do still like the social part of drinking and find that if I think resist the impulse to pour more wine and just fill my glass with water or get a water bottle in place of a beer, I'm fine. Sometimes easier said than done