Any relief for itching caused by neuropathy? - PBC Foundation

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Any relief for itching caused by neuropathy?

Florida33441 profile image
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Does anyone suffer from itching caused by neuropathy? Does anything help?

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Florida33441 profile image
Florida33441
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butterflyEi profile image
butterflyEi

I have neuropathy which improved once my pernicious anaemia was diagnosed and I was given B12 injections. I still have neuropathy (only diagnosed by GP no tests) in my hands and feet but the crawl feeling up the legs has receded.

I also suffer quite badly with the so called itch of PBC which I had before I noticed the tingling in the hands and feet.

My itch is subdued using Rifampicin, Sertraline and when I could get it Colestyramine. I am currently unable to source Colestyramine and the itch worsened.

I have previously been prescribed Gabapentin for the neuropathy (I think in the USA a similar drug is Pregabalin) and as Gabapentin did not seem to have any side effects for me I have had to reintroduce it to help calm the itch. This mixture of drugs seems to help although I still suffer the underlying hot stinging pins which make the skin feel alive. I continue to believe this "itch" is PBC related rather than coming from neuropathy.

I hope this is helpful.

janine541 profile image
janine541

Hi suffer from an horrific itch all the time but just think it's my pbc.

I've started a new drug called Riferdan and it's working

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