Memory

[Nyiah]

I'm wondering if anyone with PBC has difficulty with remembering things? I forget why I'm calling people or things I'm supposed to do. I was wondering if it is coming from the PBC or is it something else?

[PBCRobert Partner]

Hi Nyiah.

Yes, this can be a thing.

Patients often refer to “brain fog”. There is some good research going on in terms of what is medically known as cognitive dysfunction. There seems to be a link with fatigue.

I hope that helps,

Robert.

[Hidden in reply to PBCRobert]

Hi, I had the same thing for the last 6-9 months, dr tells me it is a build up of toxins caused by a failing liver in my case. I had to increase my fluid intake and bowel output to help the situation. It did help. However I had a transplant of my liver 3+ weeks ago and the minute i woke up from the surgery, my brain fog was gone. It is now great to think straight and remember things. Chin up , look forwards and enjoy what you are all doing today x.

[gwillistexas in reply to Hidden]

Hope you are doing well after your transplant 🙏🏻

[Hidden in reply to gwillistexas]

Great thanks

[liver-bird in reply to Hidden]

Great news - stay well

[Hidden in reply to liver-bird]

Thank you

[Purdy2017 in reply to PBCRobert]

Your not alone it gets embarrassing my brain seems really lazy xx

[liver-bird]

Yes, I do but I'm 73 so that might account for some of it. My blood was tested for excess potassium but it was normal

[Nyiah]

So I go to the Doctor next do I need to have them test for something exactly?

[exy21]

Yes total fog all the time now. It's a nightmare. Had a wee bit before but this is every day. Told by specialist don't know why like fatigue we get it but stuck with it.

[Yankeerose3]

Yes, along with fatigue memory is the worst known as brain fog I have a real bad time trying to remember things and they say it's due to PBC

[Beatrice110924]

Hi Nyiah

I am 70 which obviously accounts for a bad memory but this brain fog is different. Been diagnosed for 15 months.

I was in a car with my son in law and his friend who I had never met before. He was driving and we were chatting about learning to drive and I said to him "Do you drive"!!! 😜 😂

I realised what I had said straight away.

So yes I believe PBC causes brain fog 🤔

[Nyiah]

I feel so bad sometimes. My husband will ask me to do something and I forget. If I don't set reminders in my phone I want remember appointments or things im supposed to do. It makes me cry because I want remember why I call people or who I'm calling. My husband is being supportive but I feel like a burden