Pbc: Hi hope everyone ok. Anybody struggling... - PBC Foundation

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janine541 profile image
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Hi hope everyone ok. Anybody struggling with getting their prescription for questrain light powders

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janine541
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butterflyEi profile image
butterflyEi

I was prescribed cholestagel/colesevalam to replace Questran light. Apparently it went out of production. Some pharmacies had stock but it became difficult to obtain. Had to speak to GP about it. In these difficult times are you registered or does your surgery have an on line system where you can sort it out.

janine541 profile image
janine541 in reply tobutterflyEi

Hi I've rung my consultant but not heard anything as yet. Another night with this dreaded itch

butterflyEi profile image
butterflyEi in reply tojanine541

Could you try an antihistamine or have they not worked for you?

janine541 profile image
janine541 in reply tobutterflyEi

Hi I've tryed them in the past but they dont work

butterflyEi profile image
butterflyEi in reply tojanine541

I was prescribed 2 cetirizine twice a day but it barely alleviated the itch. The GP changed my colestyramine to cholestagel when I told her that the NHS Pharmacy website clearly stated questran was not being manufactured in the UK

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