Itchy skin no rash: Hi I have had itchy skin... - PBC Foundation

PBC Foundation

9,374 members7,942 posts

Itchy skin no rash

Debbweb01 profile image
9 Replies

Hi I have had itchy skin on and off for some time now, but it’s come to be extreme now! Benedryl does nothing and now I’m on Prednisone which should help if allergy, but it’s not working yet! I had doctors take liver enzymes to check my liver! I have 4 other autoimmune diseases? Does this put me at risk to get other autoimmune disorders? What kind of doctor should I see to get this sorted out!

Written by
Debbweb01 profile image
Debbweb01
To view profiles and participate in discussions please or .
Read more about...
9 Replies
gwillistexas profile image
gwillistexas

I was told to see a rheumatologist for autoimmune outside of PBC. I’ve not made appt just yet but I need to. My ANA Cascade suggested scleroderma.

gwillistexas profile image
gwillistexas

Do you know which other 4 you have? I know I have reynauds without being told. My calcium level was a little high so my hepatologist sent me to an endocrinologist. She did a 24 hour urine calcium test but it was normal.

Debbweb01 profile image
Debbweb01 in reply to gwillistexas

Yes APS, Rheumatoid Arthritis, Sjogrens, and Burning Mouth Syndrome! I’m going crazy with itching!

gwillistexas profile image
gwillistexas in reply to Debbweb01

Not sure what APS is. In the beginning (2years ago), I was negative for Sjogrens & RA. I’ve been fortunate with no itch.

Debbweb01 profile image
Debbweb01 in reply to gwillistexas

Antiphospho Lipid Antibody Syndrome/ Sticky Blood/Hughes Syndrome. It’s a thick blood problem! I lost my left leg to this rare disease! I hope u have a Merry Christmas and sort ur stuff out soon! Thx for responding

gwillistexas profile image
gwillistexas in reply to Debbweb01

I’m sorry🙁. Thank you. Merry Christmas to you as well 🎄

Nanny23 profile image
Nanny23

I think you need to see an APS specialist. The doctor in Manhattan you saw

kingsnorth profile image
kingsnorth

PBC causes extreme itching even if your lfts are within range. I take antihistamines which help but doesn’t stop it completely. It’s odd you have been given steroids if they don’t know what’s causing the itch. I have lupus and sjogrens and see a rheumatologist for both of those

Wocket profile image
Wocket

I have just been given Colestyramine for itching. It does seem to be working but I’ve only been on it for a couple of days.

You may also like...

Itchy little bumps on skin

Does anyone get itchy little bumps on your skin with PBC? I have odd clusters of these little bumps...

Itchy skin Help please !!!

applied to the skin i was diagnosed with pbc in october and get the results for my liver biopsy...

AMA positive with itchy skin

spinning since being AMA positive. I’ve recently had a fibro scan with score 4.7 which I believe is...

Itchy skin

cure an itchy skin) I was thinking about those of us who itch more so at night and rarely get a...

Itchy Scalp Please help

itch gets worse in winter, hot baths (sauna), spices (especially red chilli and turmeric). Does...