Itchy skin no rash

[Debbweb01]

Hi I have had itchy skin on and off for some time now, but it’s come to be extreme now! Benedryl does nothing and now I’m on Prednisone which should help if allergy, but it’s not working yet! I had doctors take liver enzymes to check my liver! I have 4 other autoimmune diseases? Does this put me at risk to get other autoimmune disorders? What kind of doctor should I see to get this sorted out!

[gwillistexas]

I was told to see a rheumatologist for autoimmune outside of PBC. I’ve not made appt just yet but I need to. My ANA Cascade suggested scleroderma.

[gwillistexas]

Do you know which other 4 you have? I know I have reynauds without being told. My calcium level was a little high so my hepatologist sent me to an endocrinologist. She did a 24 hour urine calcium test but it was normal.

[Debbweb01 in reply to gwillistexas]

Yes APS, Rheumatoid Arthritis, Sjogrens, and Burning Mouth Syndrome! I’m going crazy with itching!

[gwillistexas in reply to Debbweb01]

Not sure what APS is. In the beginning (2years ago), I was negative for Sjogrens & RA. I’ve been fortunate with no itch.

[Debbweb01 in reply to gwillistexas]

Antiphospho Lipid Antibody Syndrome/ Sticky Blood/Hughes Syndrome. It’s a thick blood problem! I lost my left leg to this rare disease! I hope u have a Merry Christmas and sort ur stuff out soon! Thx for responding

[gwillistexas in reply to Debbweb01]

I’m sorry🙁. Thank you. Merry Christmas to you as well 🎄

[Nanny23]

I think you need to see an APS specialist. The doctor in Manhattan you saw

[kingsnorth]

PBC causes extreme itching even if your lfts are within range. I take antihistamines which help but doesn’t stop it completely. It’s odd you have been given steroids if they don’t know what’s causing the itch. I have lupus and sjogrens and see a rheumatologist for both of those

[Wocket]

I have just been given Colestyramine for itching. It does seem to be working but I’ve only been on it for a couple of days.