Oclavia: Has anyone here taken Oclavia for... - PBC Foundation

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Oclavia

gwillistexas profile image
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Has anyone here taken Oclavia for PBC?

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gwillistexas
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Lisa15 profile image
Lisa15

Hi b-7w9

I have been taking Ocaliva since Sept of last year.

gwillistexas profile image
gwillistexas in reply toLisa15

Thank you. Do you tolerate it well?

Lisa15 profile image
Lisa15 in reply togwillistexas

Yes, I haven't had any side effects taking Ocaliva. I know it can cause itching in people who do not have the itch or it can make the itch worse in the ones that do. I already had the dreaded itch before taking Ocaliva and I don't feel that it has changed it any. I hope you will soon be able to start Ocaliva. Keep us posted.

Lisa

gwillistexas profile image
gwillistexas in reply toLisa15

Thank you. I didn't itch until I had been on Urso a few days. Been off it since Thursday night & itch is gone. I pray if my dr can get me on Ocaliva I can take it. A little itch is ok but hives is a no.

Shulsey profile image
Shulsey

I started taking Ocaliva 5mg June 9th with the Urso & started seeing a great change in my numbers. I posted them in my profile if you'd like to check them out. I recently, this week actually, started alternating the 5mg with the 10mg for the next month then I'll be taking the 10mg daily. I go tomorrow for another check of my hepatic panel. I'll post it once I receive it. I haven't had any side effects so far & am truly thankful.

Stay strong❣️

Shannon

gwillistexas profile image
gwillistexas in reply toShulsey

That's wonderful. I try to stay positive but I slip sometimes. I will decide how I think about all this once I have fibroscan in September, lol!🤗

LindaVillanova profile image
LindaVillanova

I'm starting tomorrow!

koko1 profile image
koko1

i take it for nash since 17 month now in a study with 25mg a day.

i will have a big lever check in 1 month very excited to see the result.

since 1 month i have some side effects like circulation problems and cardiovascula but is not very bad.. anyone else here who wants to exchange some experience with oclavia for nash or pbc? i know for nash its not really on the market but maybe someone takes it already like me...

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