Hi I'm 48 finally diagnosed Dec after 2 years with a useless locom doctor, who has had to leave the trust. (not surprised). I now have a lovely lady doctor who has been great, had another scan, bone scan and am waiting for liver biopsy results. It's strange you fill like the only person who has this disease as no one has heard of it who I know. I cannot drink anymore which upset me, as I like a beer. I go to the gym 2/3 times a week and ride my horse 1/2 times week. I try and eat healthy, Would be nice to talk to people who have PBC.