PBC Foundation
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For interested parties: PBCers Conference Info / July 28-30, 2014 in Las Vegas, NV USA I plan to attend and promise to post follow ups!


Location: Flamingo Hotel & Casino, Las Vegas, NV

Date: July 28, 2014 thru July 30, 2014

Join us for an informative and fun filled three days in Las Vegas at the

Flamingo Hotel & Casino. Learn the latest news about PBC research,

treatments and the future of PBC. Meet other PBCers and share experiences on coping

with day-to-day living. Make lasting friendships with those who

understand exactly how you feel.

If you have a question/s about our conference that isn't listed in this

formation or on our website, please

e-mail: _ConfOrg2014@yahoo.com_



We wish to thank our sponsors Intercept Pharmaceuticals and Lumena

Pharmaceuticals for helping make our 2014 conference a reality.

CONFERENCE FEE received on or before May 15, 2014

* $225.00 per person

CONFERENCE FEE received after May 15, 2014

* $250.00 per person

Conference Fee includes refreshments, one group continental breakfast, two

group lunches, group banquet dinner, speaker presentations & small group


REGISTRATION FORM (located on our website _http://www.pbcers.org_

(http://www.pbcers.org/) and Facebook conference website

facebook.com/PBCersConference) must be included with your conference fee/s. A

conference fee is required for anyone who attends “any” of our speaker

presentations or group meals. Conference fees cannot be prorated. No refunds after May

15, 2014. Make Checks or Money Orders payable to PBCers Organization. Mail

Conference fee to Sharon Goldstein, PBCers Organization, 1054 Corn Crib Dr,

Huntingdon Valley, PA 19006 (Address MUST be exact)

We raise funds at our conference by holding live and silent auctions. All

proceeds are donated to PBC Research. We need your help and ask each

attendee to donate an auction item. Each day of the conference we hold our



The room rate, double or single, will be $59 per night, plus resort fee

and Nevada sales tax. Each additional person over 2 will be charged $30 per

person, maximum 4 per room. One night’s deposit will be required when

booking reservations. Please book early as we only have 57 rooms blocked. Rooms

must be reserved before July 1, 2014.

To book group rate reservations online




To phone in group rate reservations, call 1-888-373-9855. Please use group

name “The PBCers” and group code SFPBC4.


1. Christopher Bowlus, MD

UC Davis Medical Center, Sacramento, CA

Professor of Medicine, Division of Gastroenterology and Hepatology,

University of California Davis

Topic Title: Emerging Treatments for PBC

2. Barbara Duckett

Social Security Administration

Public Affairs Specialist

Topic Title: SSA’s Disability Programs

3. M. Eric Gershwin, M.D., MACR, MACP

University of California at Davis, Davis, CA

Chief, Division of Rheumatology/ Allergy and Clinical Immunology, Professor

of Medicine (Rheumatology and Allergy), Director, Allergy-Clinical

Immunology Program

Topic Title: What’s New & Hot in PBC

4. Robert Gish, MD

Robert G. Gish Consultants, San Diego, CA

University of Nevada, Las Vegas

Professor of Clinical Medicine

St. Josephs Hospital and Medical Center Phoenix, Arizona

Senior Medical Director

Topic Title: Transplant

5. St Sen. Joe Hardy, MD

Senator Hardy was elected to the NV Senate (Clark District 12) in November

2010 and is serving his first Senate term. Family Physician, Henderson,


Topic Title: Depression & PBC

6. Christine Haskin, DDS, PhD

School of Dental Medicine, University of Nevada Las Vegas, Las Vegas,


Associate Professor in Residence of Clinical Sciences

Topic Title: Maintaining Oral Health in the Presence of Liver and

Autoimmune Disease

7. Keith Lindor, MD

Arizona State University, Phoenix, AZ

Executive Vice Provost and Dean of the College of Health Solutions

Topic Title: To be announced

8. Jerry Mabary

Sandhill Scientific, Inc. - Gastroenterology Diagnostic Equipment

Developer & Manufacturer

Fibroscan Vice President

Topic Title: Non-Invasive Liver Stiffness Assessment

9. Carlo Selmi, MD

University California at Davis, CA, University of Milan, Italy

Assistant Adjunct Professor, Division of Rheumatology, Allergy, Clinical

Immunology Department of Internal Medicine

Topic Title: Overlap Autoimmune Diseases Associated with PBC

10. John M. Vierling, M.D., F.A.C.P.

Baylor College of Medicine, St. Luke's Episcopal Hospital

Professor of Medicine and Surgery, Chief of Hepatology, Director of Baylor

Liver Health, Director of Advanced Liver Therapies, Program Director of

Transplant Hepatology Fellowship

Topic Title: To be announced

We have invited two other speakers which have not confirmed. If accepted

they will be announced at a later date.


Sunday, July 27, 2014 Room will be open from 3:30 - 7:00 PM for Auction,

Crafters & Sponsor Set-up

* Meet & Greet Registration from 4:30 PM - 7:00 PM (Pickup

attendee name tag and program package)

Monday, July 28, 2014

* Late Registration from 8:00 AM - 9:00 AM

* Guest Speakers from 9:00 AM - 5:00 PM

* Group Lunch

* Auction (proceeds donated to PBC research)

Tuesday, July 29, 2014

* Guest Speakers from 9:00 AM - 5:00 PM

* Group Lunch

* Auction (proceeds donated to PBC research)

* Group Banquet Dinner & Awards from 6:30 PM - 9:30 PM

Wednesday, July 30, 2014

* Group Continental Breakfast from 8:30 AM - 9:30 AM

* Auction (proceeds donated to PBC research)

* Guest Speakers from 10:00 AM - 12:00

* Lunch on your own 12:00 - 1:30 PM

* Various Group Discussions such as newly diagnosed, symptoms, etc

from 1:30 PM - 5:00 PM

* Room closes


At our conferences we raise funds for PBC research. 100% of money raised

at our conference auctions is donated to PBC research.

We ask each attendee to donate an auction item. Each day of the

conference we hold our auctions. Donated items can be crafted or new gifts. We

also accept nice antique items. Please NO garage sale items.

MANY THANKS to our conference organizers and helpers who are giving us

many hours of their time and energy. We would not be able to host our PBCers

conference without these dedicated and committed volunteers.

Andrea Stewart, Sharon Goldstein, Saundra Souza, Cathy Kirby, Jeanine

Mione, Jeannette Ehrlich, Linda Barker, Linie Moore, Janice Hurst

(Auctioneer) , Buck Brown (Emcee), Fletcher Hawkins (Equipment-Tentative) and Norma

Gray (Local post office & t-shirts)

7 Replies

Good luck and looking foreword to your follow ups and any new info x


Angela --- I am especially excited at the range of medical professionals who are going to be in attendance and can't wait to pass along any new info. I only wish there were more conferences scheduled in other countries so we can all gain the experience of meeting others like ourselves and expressing in-person support.


I wish I was coming but Australia is a long way away from Vegas!


I'm in Liverpool UK, and no one seems to know anything about PBC...even other medical professionals...including my own liver clinic, so I'm really looking foreword to any information you pick up, It should be really interesting. Don't forget to bring a notepad to jot everything down! : )


Angela --- I am the supreme note taker. Writing as I hear things, actually helps me to remember details at a later time. I will be delighted to share key learnings with this group.


Hi where are you staying in Vegas ?


Sorry just seen , should have paid more attention .