total bilirubin

[skywalker]

Hi

My total bilirubin is 0-20.5. Is this quite high?

OMG I made a mistake........ Just realised I was looking to the left hand side at the averages. This post has just been edited...... My Total Bilirubin is only 6...... Sorry for the mistake!

xxx xxx

[Annac]

Hi. My bilirubin has run at about 21 for 7 years. supposedly higher than someone with PBC... however when I had a "blip" last year and ended up in hospital it climbed bit by bit to 200 (two hundred) extremely worrying and talks about transplant . thankfully everything is back to my normal at . 21/.22. but with increased Urso.

Hope that helps settle your mind.

[Annac in reply to Annac]

Sorry I meant higher than someone WITHOUT PBC

[gracesofia]

Hi my bilirubin is 17 at the moment and I have pbc . The normal range is 0 -22 . When I was first diagnosed this year it was at 60 but thanks urso all my lfts are back to normal range :))

[melbourne]

Mine is 6. Sorry missed question. .. is your lft normal as well?

[skywalker]

Hiya

Yes my total Bilirubin is 6 as well. But the mitochondrial abs states +positive.. May be associated with PBC.

Also Substate obscured by Mitochondrial abs

I've got my annual review in November with yet more blood tests.

I always feel as though I'm waiting for the day they tell me I've got it!

I did note on my results that the eGFR (which is kidneys) was >60 which after some research seems high!

On my results they have printed out the numbers for the Renal profile, LFT's, FBC, Coag screen. But for the autoimmune profile it just says ANA Negative..... Smooth muscle Negative...... Liv/kid/micros abs Negative. Then states the above on Gastric pariet abs and Mitochondrial abs

I would have liked to have known the AMA titre!

So it's the waiting game I suppose. Wish I could let the whole thing go and get on with my life..... But my bones are sore in my ankles and wrists and hands,.. blah de blah and I keep missing a heart beat, which has absolutely nothing to do with PBC, but I get scared about everything.....