What is the test to diagnose PA? I wa... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

What is the test to diagnose PA? I was told the blood test are a 50/50false-positive.

kaley312 profile image
5 Replies

I was told I may have PA but how or where do I go to see if I do. I have a lot of symptoms especially gastritis, thin and brittle nail, pain in feet and muscles. Thanks Laurie

Written by
kaley312 profile image
kaley312
To view profiles and participate in discussions please or .
Read more about...
5 Replies
lightening profile image
lightening

Hi Kaley312. It is such a long time ago since I was diagnosed and all I can tell you having the test done by the G P is usually not thorough enough. Your Gp will have to refer you to the appropriate specialist at your local general hospital. And even then it wasn't just a single blood test it involved other tests too I cannot remember what but ask your doctor to refer you as this is what you suspect good luck. For a speedy conclusion to your concerns. Lightening

Joanne1971 profile image
Joanne1971

Hi Kaley,

I had the test done two weeks ago. the test is called Holotc(active B12 test) Holotranscobalamin. It is only done in St.thomas hospital london. see website gsts.co.uk under tab new tests. it costs £18 and you will need a gp letter to have it done. Ihad it done at bedford hospital and the blood was sent to st.thomas..

good luck

I'm still waiting for my results

Jox

kaley312 profile image
kaley312 in reply toJoanne1971

Hi Joanne1971! How much is this is U.S. dollars? I'm in the United States. Can it be sent from here? Also I meant to say the tests here have a 50 % false negative not positive. Thanks Laurie

Joanne1971 profile image
Joanne1971 in reply tokaley312

Did you look on the website Laurie. They will be able to tell you. at gsts.

good luck.

johnbarriesmith profile image
johnbarriesmith

Hi Joanne , my experience may not fit with your situation , my auto-immune problems were triggered by " Human Insulin " in 1980 , this after 20yrs of trouble free diabetes on Bovine Insulin . I managed to go back to Bovine in 1987 , this gave some welcome respite but after having to pay for a second opinion in 2006 , due Doctors protecting the Novo Cartel realised that the Auto-immune Polyglandular dammage eating away at my system started only after a few weeks from starting on the "Human Insulin" the Consultant had many more cases like mine .

My PA experience came with a very sore painfull mouth and tongue , could`nt use toothpaste

or fizzie drinks the pain blew my head off Drs mouthwash like wise . Asked my Dentist he got a referral to Maxilliofacial ,was diagnosed Pernicious Aneamia , B12 injections .

The diagnosis stated further complication to my Diabetes , destruction of the digestive section of my Pacrease ( Pancreatic Insufficiensy ) , the reason for the 229 insulin coma`s up to 2006

am taking 6 pork enzyme capsules (Creon ) per meal to digest my food , Thyroid damage was

on 300 mcg /day Levothyroxine but after being given Ciprofloxacin for serious ear infection LevoT no longer works , after 5 mths reasearch found many thousands of people self medicating

Natural Decicated Thyroid , Adrenal damage , B12 , had a camera down , Cealiac free but confirmed PA Intestinal damage ,was on monthly injections but 2yrs ago was told could only have it 3mthly was so tired and ill bought my own off the Net . I use my disposable insulin syringes .

This may not help , but may give an insight into how Big Pharna treats vulnerable patients .

Kindest Regards Barrie . Use other peoples experiences as a shortcut.

Not what you're looking for?

You may also like...

What are the symptoms of PA?

Hi everyone, This sounds strange, considering I have been diagnosed with pernicious anaemia for...
anniesensi profile image

What tests do I need to ask my GP for to rule out/diagnose PA?

Hello everyone, I apologise in advance as this post will be quite long but I want to give as much...

What is the best diet for PA?

What do some of you eat for meals; a certain diet?
Blinkysmom profile image

What blood tests need to be done on a regular basis for PA?

What blood tests need to be done on a regular basis for PA? About 6 years ago, my local...
rosehill profile image

Blood Test Results - What else do I need?

So I asked for a copy of all my results and I got a pile of papers, I didn't know what to type up...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.