I’ve had experience with the NHS and trying to get them to listen. I previously suspected that I had hemochromatosis when my GP didn’t suspect it. I paid for a generic test which came back positive. So after reading various posts on here I’m preempting my GP not looking into a PA diagnosis. My B12 levels have already dropped from the 400’s to 200’s in just over a year.
I understand that many people decide to self administer B12 shots. When would one do this as in is there a certain level of B12 that would push someone to take this route or is it when symptoms show?
If I decided to self administer how difficult is this? As in the cost / availability / method?
I’ve chased my recent biopsy results up today but they said it could be another 2 weeks. So, for now I’m none the wiser. All I know is that my recent endoscopy showed generalised atrophic gastritis mucosa and I’m low on folic. Only symptoms I’m having are churning in my stomach and pale stools. I had an endoscopy previously to confirm Celiac disease and I recall I had inflamed gastritis back then so it’s definitely progressed. My recent endoscopy said H Pylori negative. I also have Classical Ehlers Danlos syndrome which is a connective tissue disorder, Gilbert’s disease and hemochromatosis.
I’ve paid for a private PA test which includes IFAB which I have next week. My plan is to take 1000mcg oral supplements until I know a little more regarding the biopsies which were taken via the Sydney protocol.
Thanks in advance!