how long does myelin sheath take to grow back

[JesusMercy60]

hello everyone,

I was feeling the wake up symptoms today in my hips and digestive system. I was wondering if there is a time frame when the myelin sheeth begins to grow in a nerve?

[Jillymo]

This is a dificult one to answer because we are all different and it depends on how severe the damage..........

Is B12 nerve damage reversible?

Long-term vitamin B12 deficiency can cause nerve damage. This may be permanent if you do not start treatment within 6 months of when your symptoms begin. Vitamin B12 deficiency anemia most often responds well to treatment. It will likely get better when the underlying cause of the deficiency is treated.

This document might be worth a read.......... onlinelibrary.wiley.com/doi...

It explains other vitamins needed that help to repair the damage.

[JesusMercy60 in reply to Jillymo]

good morning and thank you all for your information. I am hopefull and pray that we all heal with our nerves, and yes correct about our bodies are healing machines as we were created. well this information helps and I will read these documents. I know my pain moves around and sometimes it's totally gone so I believe it is nerve healing going on.

[Technoid]

Not sure about Myelin specifically but I remember reading that nerve regrowth is about 1mm per day. Very slow indeed. Nerve damage can be permanent if a part of the nerve called the "axon" is destroyed.

ref: imperial.nhs.uk/-/media/web...

I posted a video on this topic 2 years ago, aimed at medical students:

healthunlocked.com/pasoc/po...

[Nackapan in reply to Technoid]

I was told that . 1.ml a day .Was told it would take time and patience.

It infact took years .

But alot of repair happened.

I had 2 brain MRi 's a year apart on The NHS.

The second didn't mention myelin sheath .

Also T2 flares reduced .

[JesusMercy60 in reply to Nackapan]

hello Nackapan,

thank you for your information. is the T2 flares reduced mean less activity? and is that 1mm mean at only one cite? or kinda of all over.

[Nackapan in reply to JesusMercy60]

Less inflamation i think Where nerves are damaged that need repair I'm guessing 🤔

[anetap4545 in reply to Nackapan]

Brain lesions can be pa?

[Nackapan in reply to anetap4545]

Yes it seems affects from B12 deficiency can cause all sorts .

Brain scans arnt done without concern

[anetap4545 in reply to Nackapan]

How many lesions did you have

[Treesong2023]

Here's an indicator we all know....?

When people have accidents and lose fingers, hands, arms even...after microsurgery...they have some degree of peripheral nerve repair and regrowth... But it takes months (finger tips) and years (arms) depending on scope of damage as Jillymo says. Our bodies are walking repair systems - constantly having to repairing themselves....

I have read several times at for a healthy body the repair is around 1 mm of NEW nerve per month. With repair to damaged nerves and their myelin probably working a faster repair rate..? There are lots of ancedotal examples in here...its seems to me ( purely my readings) that mood lifts and more energy come in the first 1 -3 months or so... and "repairs/regrowth" come through from 6-12 months.

But it all depends on your own bodies ability to repair itself.. with Good food, exercise, and the right meds and supplements all help here.. wishing you well..

[MindfulSquirrel]

It’s complicated by there being other factors at play. For example (this is one of my new favourite facts 😎), there are subtle fluctuations in white matter (including myelin) in the brains of people who menstruate dependent on the stage of their cycle, specifically more white matter during ovulation and less during the pre-menstrual phase. Something similar has been observed in rats depending on if they’re ovulating or not.

I don’t know if the above is the cause, but it did make me wonder if that’s part of why my B12 symptoms tend to be worse before my period.

[Treesong2023 in reply to MindfulSquirrel]

Hmmm..Very interesting... i wonder if its linked to blood and "white matter"...production...? The body focuses priority on certain things at certain times....as in the menstrual cycle...? so, resources / repairs / production change according to our body's "weather"

[Myanna23 in reply to MindfulSquirrel]

Women! No one is getting rid of us anytime soon😀

[MindfulSquirrel in reply to Myanna23]

Except in this case I am specifically referring only to those still experiencing menstrual cycles - it doesn’t apply to those who are post menopause for example, or those whose periods have paused due to low weight.

[Rexz]

About two months after start of B12 replacement therapy for mylin sheath to show improvement. Depending on severity of damage it can take up to a year or more for complete healing to take place. In some cases of prolonged deficiency there may be permanent damage.I might add that when one first starts B12 replacement therapy nerve damage will continue to progress/worsen for a period of time as the mylin sheath repair is not immediate.

To help with peripheral neuropathy of extremities like hands and feet make sure you drink plenty of water, exercise and massage vigorously the affected hand foot. Also eliminate gluten and dairy. This will serve to increase blood flow to affected peripheral nerves and promote healing. This I learned at private University Hospital in SoCal where I went for therapy.

[Pasjc in reply to Rexz]

Thank you for your information x

[JesusMercy60 in reply to Rexz]

Oh good morning,

this is all great news, thank you. it's such a blessing to get healing and repair.

[WiscGuy]

A couple of years ago, in the months after I was diagnosed with B12 deficiency, I spent a lot of time searching the medical databases for research into the correlation between treatment of B12 deficiency and resulting repair of damaged nerves. The reseach that has been done is of poor quality: too short; too few patients involved as subjects; and too much variation in dose frequency and dose size for the total research to add up to anything useful. Informally, I seemed to notice two things: 1) people who got B12 injections more frequently did better than people who got injections less frequently; and 2) people who got larger doses did better than people who got smaller doses.

Again, the studies were of poor quality, and my review, such as it was, was informal. Even so, that is the evidence that exists. So I began injecting daily in September 2021. I am making the most significant gains in the past year: 1) headaches and brain fog have largely resolved; 2) psychiatric symptoms, such as not understanding how to interact with others, have largely resolved, and I feel I once again have a grip on who I am; systemic inflammation, as evidenced by chronic stiffness that did not respond to stretching exercises, has become noticably less, and I can walk more freely than I have been able to do for years; I am still regaining sensation in my feet; and I am regaining functioning in my lower left leg, after suddenly losing substantial use of the lower leg in the spring of 2012.

All of this improvement, especially the improvement in the past year, was in spite of what my doctor "knew" about B12 deficiency and treatment of B12 deficiency. But to be fair, nobody knows much about what treatment is most effective, or whatever improvement can be expected, or hoped for, over any given length of time.

[JesusMercy60 in reply to WiscGuy]

hello Wiscguy,

very good and promising news. I'm so happy that you have been blessed and are having such great improvments. the pshychiatric symptoms are scary on being able to interact with others. mine too has greatly improved I hated that in the beginning , I inject methyl b12 eod.

[WiscGuy in reply to JesusMercy60]

One further note on psychiatric symptoms: I knew I felt uncomfortable with other people, even people I knew quite well, but it wasn't until the symptoms lifted that I understood that I had been limited in that way.