How long does it take to repair Myelin Sheath from b12 deficiency?

[jakcson9090]

I had b12 deficiencies, and had horrible brain fog for a few months. I didn't have any severe nerve issues like burning or numbness, but I think my myelin sheath was significantly damaged.

1) Is it possible to make a full recovery?

2) How can I assess damage ?

3) How long does it take to regenerate myelin sheath fully?

I am in a b12 treatment that is going well according to the significantly reduced brain fog and fatigue symptoms.

[clivealive Forum Support]

I don't think anyone can give you a definitive answer jakcson9090 as a lot will depend on the longevity and severity of your B12 deficiency - in fact once treatment starts it is not uncommon for some symptoms to appear to get worse before they get better - and we are all different.

You need to keep a healthy level of Folate as this and B12 work together to help your iron make red blood cells.

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years and I'm still "clivealive" and over 75.

I wish you well

[Gambit62 Administrator]

Whilst B12 plays a part in maintaining the protective lining around cells,it also plays a part in the processes that reset neurotransmitters so there is more than one mechanism involved in neurological problems.

the myelin sheath heals very slowly - it is possible to make a fuil recovery but sometimes this doesn't happen and damage is permanent - my impression is that permanent. Healing can take a few years - may be even more. Then x factor is really whether you are managing to get enough B12 to suit you as regimes - particularly in the UK - leave significant numbers of people undertreated.

I'm really not sure how you would assess the damage - think you would need to see a neurologist for that.

[jakcson9090 in reply to Gambit62]

Thank you for your response. Can you clear up something for me?

You said that your impression is that what I have is permanent? or that permanent healing may take a few years?

[Gambit62 Administrator in reply to jakcson9090]

All I was saying is that in a few cases neurological damage appears to be permanent but this is the exception rather than the rule.

[Sleepybunny]

Hi,

There are different types of B12 eg cyanocobalamin, hydroxycobalamin, methylcobalamin, adenosylcobalamin available.

b12deficiency.info/b12-trea...

Might be worth researching whether a particular type of b12 may be more beneficial in repairing myelin sheath.

May be some useful info in these books/websites

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society). Book is up to date with UK b12 guidelines.

"Living with Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Has several case studies.

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

UK b12 websites

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

PAS tel no [phone] answerphone

B12 Deficiency Info website

b12deficiency.info/

USA B12 website

b12awareness.org/

Dutch B12 website (has some english language articles)

stichtingb12tekort.nl/

I am not medically trained.

[deniseinmilden]

With enough B12 and supporting supplements you can get some healing for years so don't despair!

[kockero]

The most pertinent answer here would be talk to your Doctor, he is the person that can give you definitive answers, not someone guessing on internet.

[Awkward_girl]

Hi,

I was wondering if your brain fog has cleared up? I’m currently experiencing heavy brain fog and have been low on b12. I start taking it two months ago. I find this heavy to deal with...

[psawant in reply to Awkward_girl]

Keep supplementing and taking b12 , it will heal slowly. I feel much better after 4 months of treatment