Tech Etiquette : This is just a gentle... - Pernicious Anaemi...

Pernicious Anaemia Society

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Tech Etiquette

Narwhal10 profile image
3 Replies

This is just a gentle reminder to the Forum to be a little more observant. Please understand why a person has posted and what they are seeking or wish to share. Ensuring replies are addressed to the Postee. Conversations do have a tendency to go off on tangents but let us just be a bit more respectful in our behaviour to the original post. You can reply carefully, one paragraph or a few sentences to other person and then tag the postee’s name and a couple of sentences to them.

Equally, I feel it appropriate to raise another matter concerning Confidential Medical Data. It is absolutely fine if you publicly declare your OWN health problems. However, if you are disclosing somebody else’s personal and private matters on the internet, I would be extremely wary.

1) Have they given permission ?

2) Are they aware of what YOU are doing ?

3) Are they too young ? (i.e. a baby or child ?)

4) Are they too old ? Obviously, if you have Power of Attorney for both health and finances, you are responsible for that person.

Just stop, think and be mindful. If you turned on your television and saw either Wolf Blitzer from CNN, Laura Tingle from Aunty (Australian Broadcasting Corporation) or Fiona Bruce (from BBC News) telling the country about YOUR infertility when you had only recently been diagnosed with this possible misdiagnosis by listening and watching what they were reporting about you.

Furthermore, you knew that the ONLY people you had told were your partner and your best friend but their sister just so happened to be present. How would you feel on witnessing that broadcast ? You are just still coming to terms with the fact that you may never have children. Then you have to deal with this on top of ALL of that.

Excuse me a moment, I have a hacking cough.

😊

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Narwhal10 profile image
Narwhal10
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3 Replies
Wwwdot profile image
Wwwdot

Hi Narwhal

Absolutely agree with the treatment of Confidential Medical Data - that is sacrosanct.

Regarding WHY a person posts is a little less black and white. There are posts that ask specific questions or are seeking support in some way and there are posts that are sharing information that prompts conversations which can ricochet to interesting and unexpected places.

From my perspective, I enjoy seeing contributions in any direction as that is reflective of a spontaneous discussion amongst colleagues or associates, as if we were together having a friendly chat over a brew. But that’s MY preference. I don’t feel the need to be recognised as an originator and I am definitely not offended or feel disrespected when people don’t . Life is stressful as it is without me making it harder by stifling spontaneous thoughts.

Some of the “off the wall” digressions have been most useful to me because they opened thought pathways I wasn’t aware of and made me think. But that is MY perspective. I appreciate there are different and equally valid perspectives.

I welcome any and all contributions to any of my posts or comments as that is a closer reflection of a dialogue amongst friends. To me it’s about engagement of those with a shared experience.

Perhaps when we post we could agree informally to a “code” ie ON TRACK ONLY responses please or CHAT RESPONSES WELCOME?

However, I do see your concern because when someone asks for help with a specific issue, they may find conversational digressions difficult.

Diolch

🤗🤗🤗

Narwhal10 profile image
Narwhal10 in reply to Wwwdot

I personally love discussion, theories, brainstorming but that’s me, you and quite others agree. Plus, I’m never offended if my posts are hijacked, it’s like a little party. People catching up with each other who haven’t seen each other for a while.

It is just the person may be so poorly, their sight is impaired, they are struggling to type and yes, we are a welcoming bunch but it may just be a little bit too much for their current state of health.

There’s a lovely quote,

Everyone you meet is fighting a battle you know nothing about. Be kind. Always.

😘

Wwwdot profile image
Wwwdot in reply to Narwhal10

Hi Narwhal

ABSOLUTELY be kind always.

🤗🤗🤗

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