B12 deficiency: Does anyone have this... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

B12 deficiency

mbhembe profile image
10 Replies

Does anyone have this bone pain down the legs as I do now. just finished my 7 days daily shots

Written by
mbhembe profile image
mbhembe
To view profiles and participate in discussions please or .
10 Replies
MrsTuft profile image
MrsTuft

yes I had months of legs numbness and then pain. It’s the nerves coming back. You need EOD injections until it lifts.

mbhembe profile image
mbhembe in reply to MrsTuft

Thanks MrsTuft. was getting confused here

Wwwdot profile image
Wwwdot

Yes. I agree with Mrs Tuft. I have been self injecting every other day now and feeling better overall but pain moves around in time blocks. Currently my shoulders and arms are experiencing internal pain and aches. Signs of healing and you need B12 for this to happen.

Keep an eye on other nutrients as the B12 will use these up more quickly once healing is in progress.

Best of luck.

mbhembe profile image
mbhembe in reply to Wwwdot

Really appreciate your responses, they are healing on their own

WIZARD6787 profile image
WIZARD6787

I had what I referred to as lightning pain as it seemed to come out of the blue and in different areas at different times. It got worse as I reversed out from having more B12 in my blood. It has all but gone away. It was distressing.

mbhembe profile image
mbhembe in reply to WIZARD6787

Many thanks on this

B12life profile image
B12life

how long have you been injecting and what is the frequency?

When I realized I needed a higher frequency, and then started injections ED/EOD then I started healing which presented itself as excruciating pain throughout my body to the bone! All over. It lasted a month and then went away. It was from the nerves starting to heal as they get the b12 they need to regenerate. Problem is it happens all at once. Not sure this is your scenario, but if it helps that is what I experienced. I had to take a leap of faith that it was what everyone expressed as "it gets worse before it gets better". Now here I am doing much better and am able to work and stay active. I'll never be what I was, but what the b12 and b1 has done for me is amazing. This forum, PAS and the people involved (yes, all of you) have been amazing.

Don't give up and keep up the injections. If your b12 was low and you eat meat, don't let medical staff tell you that you don't need frequent injections.

I will need these injections for the rest of my life.

mbhembe profile image
mbhembe in reply to B12life

Much thanks for the hope. I first did 1ml per day for 7 days of B12 then I ma on the weekly schedule now still on 1ml per week. After that I will be taking 1ml per month, according to the Doctor's prescription.

MrJustatip profile image
MrJustatip

Maybe a little bone pain, but mostly for my wife and me it's the nerve pain shooting from our hips down our legs. When at it's worse it feels like severe back spasms. Eeeee

mbhembe profile image
mbhembe in reply to MrJustatip

yeah it's bad, have that one too, the nerve down the leg. much thanks bro, we will overcome it

You may also like...

Is it B12 deficiency?

couple of days I have felt dizzy when turning my head or looking down whilst walking and just feel...

B12 deficiency and b12 deficiency anemia

partner does not have b12 deficiency anemia as his blood count was perfect, she said he may have...

B12 Deficiency and B1 thiamine deficiency?

and seem to have less neurological symptoms, have more energy, less pain and generally just great....

B12 deficiency v. Ferritin deficiency

everyone. Some of you may have come across one of my posts this week and may have interacted, but...

B12 deficiency with High Serum B12?

to get diagnosed. Since I have been having injections twice weekly I have seen so many symptoms...