Uti’s: I suddenly developed an allergic... - Pernicious Anaemi...

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Uti’s

msjalien profile image
17 Replies

I suddenly developed an allergic reaction to penicillin. Then a few years later I kept on having reoccurring water infections. The doctors can only give me 2 types of antibiotics for UTI’s. I THINK the one you mentioned earlier? Probably the cheapest one in the uk. Which would give me stomach issues. Now I’m not going to beat around the bed….I was a manager for a business that turns over a lot of money but I quite literally shit myself and made a huge mess of the rest of the toilet🤦🏼‍♀️ Not my finest day.

But the pain from the water infections was draining. They gave me antibiotic sachets?

The worst thing was that when they kept putting me back on the one you said (I can’t spell it🤣) that Doxy thang. I started to notice I was tingling in my fingers. Weird sensation but I can only put it down to that.

Went private and the idiot put me on some antibiotics that landed me in hospital last Christmas Day. But then he did operate to widen some tube. Which has got rid of the water infections but I feel like I have to wee all the time now.

Anyhows hope you are okay? I’ve had B12

Injections for 18 years but all stopped since lockdown not had one for 3 ish years now.

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msjalien
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17 Replies
Nackapan profile image
Nackapan

How did you manage with b12 Injections suddenly stopping after 18yesrs ??

msjalien profile image
msjalien in reply toNackapan

I used to self inject but I can’t afford to source anymore. I’m in a pretty bad place atm tbh.

Hectorsmum2 profile image
Hectorsmum2

It sound slike you need you injections back.

2FloorLuka profile image
2FloorLuka

Hi!

Its amazing how some doctors think that pandemic can cure PA. After 18 years of injections, out of sudden, everything is fine and you are free to go, with no treatment.Its ridiculous. You must reinstate your injections ASAP, otherwise you will keep having infections. Without B12 our immune system weakens and we become more vulnerable to every little bug.

((Hugs))

Whoa182 profile image
Whoa182

The antibiotic saches you are talking about was Fosfomycin?

Please say that did not cause tingling :| It's the one I probably need to take in a few days...

Doxycycline gives me burning and tingling sensations since developing a B12 deficiency.

ZeldaGodoy profile image
ZeldaGodoy in reply toWhoa182

I recently had Fosfomycin for a UTI. I believe it works over a few days to get the full impact of it. It can cause backache I think but am not sure tingling is part of the side effects. You should read the Public Info leaflet before taking. I've taken it three times now but the last time I don't think my body likes it any more as I felt unwell after it. I do however have problems with my digestive system so I thought it was more that than the antibiotic. I've just had a blood test to check my system but it's so difficult getting an appointment with my GP. Hope it goes well and sorts out the UTI, the firs time I took it my UTI cleared up for a year, I did also take D Mannose and Cranberry tablets as well to boost and protect

Whoa182 profile image
Whoa182 in reply toZeldaGodoy

Thank you... I would need to take it for 2 days in a row, and then every other day for 2 weeks, minimum. So it's longer than the typical course for simple UTI's.

I'll take high dose probiotics with it.

When I took Trimethoprim and Doxycycline, they gave me tingling and burning pains, despite being able to take them for weeks at a time without problems prior to B12 deficiency. I only realized I had an issue with B12 AFTER I had recently tried those antibiotics in the past few months.

msjalien profile image
msjalien in reply toWhoa182

no it was nitrofantin caused me tingling. I don’t think I’m allowed to take doxycycline anymore

Whoa182 profile image
Whoa182 in reply tomsjalien

I see. Do you remember if the sachets that you took was called fosfomycin (it's also called Monurol)?

Edit: I see in your other comment that you aren't really sure which antibiotic caused the tingling?

msjalien profile image
msjalien in reply toWhoa182

the sachet ones were called that. No it was nitrofantin that caused tingling. It was okay the first few times I took it - then I noticed this weird tingling in my fingers the next 2 times which was too much of a coincidence. I also suffered terrible tummy on those too. The sachet ones were okay but I just didn’t find those very effective after a week or 2.

did they send your samples away and they were definitely infections? I only ask as low vaginal estrogen can present as recurrent uti’s. It feels exactly the same. I had the exact same issue and vaginal estrogen has fully resolved it.

msjalien profile image
msjalien in reply toKnackeredandcross

yeah ecoli they said on some of them

msjalien profile image
msjalien in reply tomsjalien

I have recently been using estrogen pessaries also and I do think they help

ZeldaGodoy profile image
ZeldaGodoy

I've just been asked to repeat a blood test for B12, folate and thyroid. Last year I was B12 deficient but the GP said I didn't need supplements even though the specialist at the Lipid clinic said I did. Now I'm having to redo, I wonder if B12 deficiency is going to show up again and if so whether I will be put on supplements.

msjalien profile image
msjalien

I actually thought I was replying to someone else when I posted this. So sorry everyone. It was actually nitorfan (I haven’t spelt that right) that caused the tingling. But it was either that or the sachets. It was miserable to be fair. Only had a choice between both of those antibiotics according to my gp. Thanks for comments from the person saying about HRT in the vagina because I have been prescribed estogen pessaries recently and that is definitely helping. Bit of background I had a hysterectomy 5 years ago but was offered nothing in the way of HRT in that department.

msjalien profile image
msjalien

I’m also awaiting blood tests again for B12. They put me on tablets since lockdown and I know I’m going downhill again without jabs

msjalien profile image
msjalien

btw nitrofantin is the devils work. Horrible stuff. Even the capsules look like they are toxic

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