I have just had nerve conduction tests and shows an irregularity in my left arm and my right foot - it shows that my left arm nerve speed is half of my right arm. And my right ankle is also low. Interestingly this is exactly where my left arm has nerve pain and right ankle impacts my running.
We had a good open discussion on pernicious anaemia patients vs nerve results, and he said that my case is unusual as pernicious anaemia patients tend to have depressed nerve speed on symmetrical sides of the body.. mine shows one side.
Can anyone in this group provide a view that this is the case ?
Regards
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PAapr22
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Yes, most of the time nerve issues are bilateral. However there are people here who have reported issues on only one side or that one side is more affected than the other. I wish I could remember who.... hopefully they will pop along and say hi.
I have sadly just started having shooting nerve pains in my right hand but noticed aching today in my left hand, so it appears it is going to be bi-lateral.
You may not be symmetrical, but it is both sides! I think we vary - I started with right arm/hand, always worse than left arm/hand, then right foot with a little in left foot. Fast forward 20 years, left side of face and left foot and left lower leg decide to really join the party, and I could feel that right leg probably wasn't far behind, although it has stayed far more subdued, even though right foot about equal now to left. Small Fibre Neuropathy, I am told, and of long duration and as yet unidentified cause(s) - gluten, EBV and B12/folate seemingly my triggering triumvirate. Cheers
Actually I think you need to be wary now! But as you are getting plenty of B12 (and hopefully a little folate) you should be able to pin down other contributory factors a bit quicker. Best wishes
Litatamon thanks - My electric nerve pain in left arm came 8 weeks after loading and some extra jabs and had no nerve issues before b12 loads when PA diagnosed.
Bursitis of the heel issue diagnosed similar time as nerve issues and nerve conduction test pin pointed the area on my ankle with fluid built up causing achilleas tendinitis.
The correlation between PA and nerves and other physio related issues seem so obvious but hard to prove.
Physio is now helping on the foot 6 months after b12 jabs and SI b12. Now starting to run a bit
I’ll update when I see the neurologist that will group these findings together.
It is quite likely that your current nerve issues are due to healing, now that your body is getting some much-needed B12. Hopefully you will see improvements in some areas even if not a linear progression, and will continue to see benefits for some time to come yet.
"...and had no nerve issues before b12 loads when PA diagnosed."
Wow, so very sorry you have some now. But very happy you didn't suffer earlier. As you know it is hell to have nerve pain.
Hope you get it all figured out.
I am not the only one, with the one side. The only reason I know is a former member here used to tell us it was not b12 deficiency. And we all used to come on and tell him we had one side for years and it went with b12 shots so whatever. Smiling.
Mine is one side only - started with a cold feeling in one foot and graduated to an altered sensation in the big toe of that foot. Funnily enough I posted today about it as I was wondering whether increasing my b12 injections might help to improve things even though it’s 10 years down the line - that cold feeling drives me mad in the winter. Not sure where my post has disappeared to though? 🤷♀️ Hope things improve for you.
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