importing b12

[pom01326]

Where can I get 1ml Hydroxocobalamin ampoules from please? Will I have to pay duty ?

Cheers

[jade_s]

Hi! If you click on this post

healthunlocked.com/pasoc/po...

and scroll down to wedgewood's reply, there are various options. Panpharma and Pascoe offer the 1ml ampoules. Versandapo seems to be out of stock of Panpharma at the moment so you could try other places or wait a few days, they usually come back in stock quickly. If you register on their website, you can click on tbe button to get informed when it's back in stock.

I'm not sure about having to pay VAT.

[Bellabab in reply to jade_s]

Not payable on imported medication.

[Sleepybunny]

Hi,

Just wondered if you get any treatment from NHS?

Unhappy with Treatment (UK info)?

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

NHS Complaints

patients-association.org.uk...

Care Opinion website

careopinion.org.uk/

Local MP/devolved representative may be worth talking to if struggling to get adequate NHS treatment.

A few people got to the Press/other media

Newspaper article about patient struggling to get B12 treatment in Scotland

eveningtelegraph.co.uk/fp/i...

And a positive follow up story

eveningtelegraph.co.uk/fp/b...

If you have a PA diagnosis or suspect PA, worth joining and talking to PAS.

PAS membership is separate to membership of this forum.

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

As you're in UK, I suggest you get hold of the local B12 deficiency guidelines for your area and compare them with BNF, BSH and NICE CKs links below.

CCGs (Clinical Commissioning Groups) were replaced by ICBs (Integrated Care Boards) in England on July 1st 2022.

BSH Cobalamin and Folate Guidelines

b-s-h.org.uk/guidelines/gui...

Summary of BSH Cobalamin and Folate Guidelines

pernicious-anaemia-society....

Diagnostic flowchart from BSH Cobalamin and Folate Guidelines which mentions Antibody Negative PA.

stichtingb12tekort.nl/engli...

BNF Hydroxocobalamin

bnf.nice.org.uk/drug/hydrox...

NICE CKS B12 deficiency and Folate deficiency

cks.nice.org.uk/topics/anae...

There are currently new NICE guidelines in development for Pernicious Anaemia and B12 deficiency. These should be published in 2023.

nice.org.uk/guidance/indeve...

If you click on "project documents" then on "consultation comments and responses" it gives a good insight into current issues around diagnosis and treatment( over 40 pages).

Links to forum threads where I left detailed replies with lots of B12 deficiency info eg causes and symptoms, more UK B12 documents, B12 books, B12 websites and B12 articles and a few hints on dealing with unhelpful GPs.

Some links may have details that could be upsetting.

Some of the info will be specific to UK.

healthunlocked.com/pasoc/po...

healthunlocked.com/pasoc/po...

I am not medically trained.

[Polaris]

You won’t have to pay import duty on goods under £135.

[Gambit62 Administrator]

pom01326 - have removed the name in the last line of this post.please note that feed from HU is used on other sites - including NHS sites.