Palpitations

[SKYROCKET123]

I have been doing daily injections of Hydroxy but found I was getting very snappy and hair trigger with everyone so after a mix up with Versandepo I ended up with Cyanocopabalamin so I have been injecting that instead and my snappiness seemed to stop.

I just went on holiday and was getting palpitations which I wondered whether they were down to the B12.

My B12 when tested at the GP was:

Serum vitamin B12 level 414 pg/mL [191.0 - 663.0

I had horrendous neurological symptoms, staggering about, couldn't think straight or find the right words, foot and hand twitching, buzzing electric feelings in my hands and feet and various others. I felt like I was dying. My GP was not sympathetic so no change there. I started sublinguals which helped a bit but weren't really touching the sides. It was with you knowledgable superstars that I was able to learn about self injecting and decided to do something about it as the GP wasn't interested and I didn't have the energy to fight.

My symptoms started dissappearing fairly quickly and if I've missed a day, which happened on holiday because I was scared of the palpitations, I started getting the foot twicth and hand twitch and a 'pulling' feeling in my left cheek. I had this when I was bad with symptoms before B12.

I am now in a position where I feel I can't discuss this with my GP because I have been self injecting but I am worried about the palpitations.

I'm sure I read on here that the medical profession think too much B12 can cause heart problems.

Are there any sympathetic private B12 Drs in Yorkshire I couold go and see to discuss?

I feel we are being failed if we fall between the cracks and don't present as a cut and dried case of B12 deficient. It clearly stops my symptoms so I know that I need the B12 because the rate that my symptoms return without it is scary but it leaves me helpless with things like the palpitations.

I am also bursting into tears all the time but that might just be down to the craziness going on in the world at the moment.

Apologies for the War and Peace essay, it took all my energy to write this.

[SKYROCKET123]

Please does anyone have any advice?

[Nackapan]

I had palpitations before adequate b12 treatment.Also when my ferritin was low.

If you get full bloods done it may help

Don't be put off seeing a Gp

Your b12 seems low on injections??The figures in brackets confusing .

In range us usually 200-900pg/ml serum?

Why was it tested?

We're the rest of your blood results okay.

Folate iron ferritin vit D ?

Do you take a multivit.or anything else.

Csn you see another Gp to start aftesh?

There arnt any b12 doctors in the UK to my knowledge .

Some do take an interest or refer on.

[jade_s]

Full iron panel like Nackapan suggested. In case GP won't help, private testing options via the thyroiduk website thyroiduk.org/help-and-supp...

How is/was folate?

I sometimes need more b12 when travelling or when it's hot out or when i'm more active.

Palps could also be low potassium especially if you just recently increased frequency. Try eating more bananas or avocado. Coconut water is supposed to have lots of potassium. Or a salt replacer, that will have potassium rather than sodium.

Try not to stress about it, even though it doesn't feel so nice... just systematically work through the various possibilities.

[Pickle500]

I had constant palpitations from B12 deficiency and all through treatment. You need to just stick with the treatment and injections. It is a tough road, but don't be worried that you're not doing something correctly - just keep doing the daily Cyanocobalamin, take a multivitamin and keep going.

For me it was quite a long time before the palpitations stopped, at least 6 months. It is worrying but don't be, it will eventually settle down with enough regular injection.

[B12life in reply to Pickle500]

Dido! I had serious palpitations all trough treatment until 6 months or more. Just keep up the treatment and they will go away after some time.

[rogergee]

Sorry to hear how you are being affected Skyrocket123. I haven’t seen a private doctor for this but I know that there are some who will consult remotely if there are none within the distance you prefer. All good wishes for things improving for you.

[Cherylclaire Forum Support]

I had a thumping heart which was occurring with increasing frequency, and would wake me in the night. I was fitted with a 24-hr heart monitor, and it turned out that I had ventricular ectopics - which are disturbing, start for no known reason, and can stop in the same way. Almost 4,000 episodes had occurred during monitoring- but a heart specialist appointment unnecessary. I was offered statins by my GP, but chose not to take them. I waited it out - it took a few months, but they did go. Just knowing not to worry helped. None of this investigation would have happened without a supportive experienced GP. I think that Nackapan is right -if at all possible, try to find a more sympathetic doctor. One who will help you to find a way to get your life back on track.

"Heart palpitations" or "arrhythmia" are often mentioned as a symptom of B12 deficiency, but ruling out any heart defects seems a sensible move - especially as "anxiety" is also on the symptoms list. The B12 Institute have a list of symptoms on their website (a recent post here had a link) - "lability" (weeping a lot) is included there.

This can be very frightening. I found that learning as much as I can from the forum users and administrators helped enormously, alongside reading research, relying on the support and advice on this forum - and a good GP. Not one who knows everything about B12 deficiency and it's symptoms, one who cares to find out how best to help you !

[EllaNore]

Good question skyrocket123. I weep a lot. I thought I was just really depressed and I thought there was something mentally wrong with me because of it. I cry so easily it's so irritating and even embarrassing. I'm having heart palpitations too and I feel like I'm going to pass out if I stand up too fast or turn too fast, but I'm only 4 months into it so you asking this question was very helpful.

I was wondering how often are you self-injecting now?

I'm doing it every day. One day this week, I tried not injecting, to see how I would feel, and I felt pretty good that day, but the next morning I was quite confused and discombobulated and pain set in pretty quickly. I found myself needing to lay down all day, i felt generally horrible and lethargic. It took me 3 days to get back to where I was. So if I even miss one day it takes 3 Days To recover from it for me. So I was wondering maybe do you need to inject more B12?

[B12life in reply to EllaNore]

Same here. I can’t miss a day or I pay the price. I’m on cyano. And agree here that maybe you just need more injections and to wait it out.

It doesn’t hurt to get heart tests just in case, but I didn’t have the energy or time so I didn’t but my heart palpitations went away after months of daily shots.