titled bowels gone haywier

[3rdNettydoon]

I have been SI for about 5 ormore weeks. My bowels are all over the place.im ringing doctor but just wonderedif this can happen with the extra b12 serum.i am leaking, a lot, most of the time. I am very frightened but that is my nature.

[Jillymo]

Hi Netty,

As you know we are not medically trained but you do need to speak to your Dr about your present condition with regard your bowel. I take high dosage of B12 without any bowel issues.

Many things can affect the bowel such as the lower spine, diet or general weakness. Anxiety could also play a part in loose bowel movement. Try not to worry ( easier said than done ) but do go to see your Dr.

Take care. 🤗

[3rdNettydoon in reply to Jillymo]

Thank you. I am waiting for a phone call from a doctor. Hope all is okay, it is not nice at all.

[Nackapan in reply to 3rdNettydoon]

Let is know how you get on

[Midnight_Voice]

We find one of the few side effects of a B12 shot is a marked urgency about a trip to the loo the day after.

In fact, that’s how we know it’s ‘taken’.

But one trip, not many, nothing liquid or uncontrollable.

What you are experiencing needs urgent treatment, probably loperamide (Immodium), and rehydration packs, so you are absolutely right to be in urgent touch with your doctor about it, who will prescribe the correct treatment, and which may be, or may depart from, what I, not medically trained, describe above.

[Narwhal10]

Sorry to read 3rdNettydoon,

I do hope you manage to speak to a doctor and they are doing something for you.

As Jillymo said there are many factors that can influence gut transit and leakage.

I have ileocaecal valve dysfunction (the valve between the small and large intestine does not work as it should). Generally when I eat, that valve which is influenced by the nervous system and hormones opens and mid meal or immediately after a meal, I can be struggling to get to the toilet. Also, I’ve woken up in the morning to find I’ve soiled myself.

For practical and emotional support, you may want to contact Guts U.K. and/or the Bladder and Bowel U.K. as it is a hidden disability and not often discussed as it can be embarrassing.

gutscharity.org.uk

bbuk.org.uk

I’ve had symptoms of coeliac disease since aged 19. Lived with the shame of not being able to always control my bowels, pain and bloating. I was avoidant of food until the evening as a coping mechanism. I’m now pushing 50 and I want people to know that so many people struggle with this day in and day out.

Best wishes

[3rdNettydoon in reply to Narwhal10]

Thank you for this. I'm waiting for results of sample test. One came back 'no further action' and a note saying still waiting for another result. This has really scared me. Makes my tummy churn which doesn't help. I too have the shame feeling. I am also reluctant to go anywhere 'just in case'.

Thanks again.

[3rdNettydoon in reply to Narwhal10]

Sorry that you've got n had this long term. I've noted the links you have given me. I'm a tad frightened to read them just now but I will. There must be a lot of sufferers when there are contacts like this. I'm now 75 and cant remember when I didn't have pain, urgency and bloating. And i agree it is a struggle every day.

I wish you well in your future and hope we all find a cure for this.

[Narwhal10 in reply to 3rdNettydoon]

Thank you for your lovely reply, 3rdNettydoon.

They have links to telephone numbers and maybe, when you feel it is appropriate for you, you can access their support.

I rang one of them, burst into tears and said how I’d suffered for years (in my 30’s, I became more constipated which happens in undiagnosed coeliac disease).

The lady was so lovely, patient and I felt listened to. I sobbed down the phone. It made me realise I wasn’t facing this alone. It is not our fault, it’s an illness or a symptom of an illness. So, hopefully, the doctors can find out what is wrong with you in your particular case.

People do not realise the impact having poor bowel and/or bladder control has not just physically, emotionally but socially but they do. I felt emotional supported and through just that phone call, it gave me more courage to speak out.

X

[3rdNettydoon in reply to Narwhal10]

I hope you realise how much your courageous honesty has helped me. I have had lots of tests over the years and again last week. All say no further action. I am thankful that its the same this time. The local doctors know me and they have been extremely patient and thorough over the years. I am going back to doctor to discuss finding a way for me to stop my panicking and actually see if a dietitian or nutritionist will be able to advise me on my diet. Like yourself I try not to eat much hoping this will lessen frequency of bowel movements. I now suspect that this may have made my symptoms worse. When I'm calm so is my tummy, but when my anxiety kicks in so do the bowel frequencies. I've been this way for about fifteen years now and if I dont finally get a grip me and my husband's twilight years are going to be ruined, as have many holidays and other occassions. I was actually feeling that my B12 injections had begun to help both this and the severity of my anxiety.

Sorry if I'm rambling a bit. It's only with you, Narwhal10, speaking out I thought I could try it too.

Hopefully these posts will help other sufferers to realise they are not alone.

[Narwhal10 in reply to 3rdNettydoon]

3rdNettydoon,

It is my pleasure. Nobody should suffer. You communicate well, so rest assured there were no ramblings. I am pleased you have good, patient doctors.

Anxiety is linked to B12 deficiency but we also may have other deficiencies too. Although, we are ‘conditioned’ differently. So, what one person perceives as stressful another might ‘enjoy’ the pressure. We are all so different.

In my opinion, it is definitely worth seeing a dietician (I have found them cheaper than a nutritionist). Plus, keeping a food diary, you may have intolerances but have no idea or are only able to tolerate say for example, having half a green-ish banana.

Just a little story, in my late 20’s, I had ‘stress’ at work. Now, being an introvert, I managed as I always did, ‘it’ll be fine, smile and nod, just get the project done’.

Outside of work, my frustration, as usual was directed into sport (running was my main love). So, I’d do longer runs to process my thoughts and emotions which in turn, meant I needed more fuel. Instead of my usual chicken and bananas, I turned to bread (big no, for a coeliac). Within a couple of months, I crashed and burnt. I was signed off with stress - ‘nervous breakdown’. My dizziness, lethargy, nausea etc were apparently, ‘psychosomatic’.

Thanks to knowledge and supportive here, I know different. Being patient and kind to yourself is a skill. We are all on a journey and taking each step at a time can be a wiser approach.

x

[3rdNettydoon in reply to Narwhal10]

I will definitely look out a dietician then. I need guidance without guessing. I was a runner too. When I was younger and again in my 50s. Completed TheGreatNorthRun a few times. Grand event if you enjoy half marathons. Past it now. Even find it hard to ride my bike.

I swapped this for Open University where I did English Language and Literature. I loved it. I got my degree and at 71 years old I went on stage at the Sage in Gateshead to proudly claim my scroll.

I had a breakdown as my last year began. When I tried to complete my degree two years later, I couldn't follow a recipe never mind write great essays. My result was not what I was working towards. but now I realise my lower quality of work was because my B12 levels were nearly in my socks.

But, I did it.

And WE will do this too. X

[Narwhal10 in reply to 3rdNettydoon]

Well done on your degree,

Yes it’s very difficult to write sentences with low B12. But we did it.

x