On TV this am!!!: They are talking... - Pernicious Anaemi...

Pernicious Anaemia Society

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On TV this am!!!

jaybirdxNHM profile image
19 Replies

They are talking about B12 on Morning Live BBC I at 9.15.

How I'll a lack of it can make you.

Good.

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jaybirdxNHM profile image
jaybirdxNHM
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19 Replies
Jillymo profile image
Jillymo

I shall switch on and watch with great interest. ☕🛋 📺

Ops forgot my 👓 cant see sod all without them.

jaybirdxNHM profile image
jaybirdxNHM in reply toJillymo

Not good enough, mentioned Pernicious but didn't define it, eg killer. Didn't mention injections.Wasted opportunity.

Ho hummm.😥

Jillymo profile image
Jillymo

There I was at the ready with my bowl of porridge to find the veiwing was a let down and not very informative.

What they needed was some of us on there to inform them how the deficeincy affects our lives and wellbeing.

Cup-cake7 profile image
Cup-cake7 in reply toJillymo

Good idea. I wonder if anyone would listen if wrote 🤔

helvella profile image
helvella in reply toCup-cake7

Don't worry whether they'll listen or not. Just write. :-)

If you (and others) don't, they most certainly can't listen to your view.

Cup-cake7 profile image
Cup-cake7 in reply tohelvella

Definately. It’s just Iv found it lost cause in the past and tooo frustrating at times 😊. Gone are days when you got a reply lol

Cup-cake7 profile image
Cup-cake7 in reply tohelvella

Best going in as complaint

Cup-cake7 profile image
Cup-cake7 in reply toCup-cake7

To complaints Dept I meant

SallyRees profile image
SallyRees

Too late 🤦🏻‍♀️

jaybirdxNHM profile image
jaybirdxNHM in reply toSallyRees

Didn't miss much!!!!😟

SallyRees profile image
SallyRees in reply tojaybirdxNHM

Oh really?! What a let down ☹️

MartynLewis profile image
MartynLewis

Here's a link to the BBC iPlayer of the programme this morning

bbc.co.uk/iplayer/episode/m...

SallyRees profile image
SallyRees in reply toMartynLewis

Many thanks, Martyn. At least it’s being spoken about but good luck getting a GP who understands, let alone get an appointment 😏

It’s 9.29 in for anyone wanting to watch 👍🏼

MartynLewis profile image
MartynLewis in reply toSallyRees

There's also a very short Q&A at the end of the programme from about 39mins

SallyRees profile image
SallyRees in reply toMartynLewis

Oh okay, thanks for that. I’m off to watch now 😁

Gaudygoat profile image
Gaudygoat

If you see this later, (and the link above doesn't work) it was the Morning Live show from 06/07/2022. I'm afraid though it offered nothing for current sufferers. I didn't disagree with anything that was said but it was very superficial and the only use was for someone feeling tired who might be thinking about seeing advice.

Cherylclaire profile image
CherylclaireForum Support

GOOD ! Finally, someone talking sensibly about the risk to vegans.Also good that pernicious anaemia was actually mentioned, that other non-dietary causes were mentioned, that taking a friend to the GP was mentioned (although doubt you'd get to see one in reality.) Good that his symptoms list included more than just tiredness. Good that so many people got in touch about B12 deficiency that there was Q&A at the end - especially because someone asked whether a FBC would include a test for B12. If only......

Bad that in the reply the doctor talked about FBC including a red blood cell count - when macrocytosis only happens in about 60% of cases.

"Among 141 patients with neuro-psychiatric abnormalities due to cobalamin deficiency, we found that 40 (28%) had NO anaemia or macrocytosis."

So perhaps we should send him Martyn Hooper's book - I think he might actually read it.

Let's hope the "concerned well" do not consequently exasperate GPs sufficiently to swerve the B12 tickbox, as advised by that Essex GP in his rather flippant article: It is certainly not the new Vitamin D - since barely anyone has heard of it and those that have do not seem to have much of a clue, including many GPs.

Still, more "goods" than "bads" - so wondering if he himself, since he suffered from long covid, needed B12 (?)

daknash profile image
daknash in reply toCherylclaire

I had macrocytosis, but who wants to wait until you are late stage to be noticed!!!

Cherylclaire profile image
CherylclaireForum Support in reply todaknash

Exactly !

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