Gilbert’s Syndrome

[Hedgehogs15]

Good morning from England.Ijust thought I would share this with you. I have suffered with pernicious anaemia for over 40 years and a few years ago after a routine blood test I was told I had Gilbert’s syndrome. Nothing to worry about said the doctor, same interests as we get for our B12 deficiency. No symptoms they said but there are many! Gilbert’s can also have the same symptoms as B12 snd it makes it worse so next time you visit your doctor or have a blood test it might be worth a mention.

Here is an article from another caring forum like this one-

Have just been diagnosed with Gilberts Syndrome, but would let you all know that elevated bilirubin is also associated with B12 deficiency and can have same symptoms. If you are having blood test ask for a B12 level test which should range from around 400 to 1000 as normal. Also with the blood test your MCV level should be monitored as if this is also elevated another sign of B12 def. Check out website for Pernicious Aneamia Society for more info.

Take care. X

[Nackapan]

Yes my daughter when young was diagnosed with Gilbert's syndrome and told thd same.

Probably an early sign in Hindsight

[Hedgehogs15 in reply to Nackapan]

Thank you and I hope all is well with you and your daughter. My eldest son has Gilbert’s too x

[WhyAmISoTired]

I was told I had Gilbert's syndrome based on high bilirubin but my bilirubin is back to normal after I started levothyroxine for hypothyroidism.

[Hedgehogs15]

I really hope you stay well and symptom free from `Gilbert’s syndrome and that’s a really interesting fact thank you for sharing it with me

[Sleepybunny]

NHS link about Gilbert's Syndrome

nhs.uk/conditions/gilberts-...

[Hedgehogs15 in reply to Sleepybunny]

Thank you for this valuable information and for taking the time to send it to me it’s much appreciated. Had a dreadful weekend, pain in liver, brain fog aches because of Gilbert’s and my B12 injections being due on Wednesday. Take care and thank you again x

[Sleepybunny in reply to Hedgehogs15]

NICE CKS (Clinical Knowledge Summary) Gilbert's Syndrome

cks.nice.org.uk/topics/gilb...